Pediatric solid organ transplant recipients: Transition to home and chronic illness care

被引:57
作者
Lerret, Stacee M. [1 ,2 ]
Weiss, Marianne E. [3 ]
Stendahl, Gail L. [2 ]
Chapman, Shelley [2 ]
Menendez, Jerome [4 ]
Williams, Laurel [5 ]
Nadler, Michelle L. [6 ]
Neighbors, Katie [7 ,8 ]
Amsden, Katie [7 ,8 ]
Cao, Yumei [9 ]
Nugent, Melodee [9 ]
Alonso, Estella M. [8 ,10 ]
Simpson, Pippa [9 ]
机构
[1] Med Coll Wisconsin, Dept Pediat Gastroenterol Hepatol & Nutr, Milwaukee, WI 53226 USA
[2] Childrens Hosp Wisconsin, Milwaukee, WI 53201 USA
[3] Marquette Univ, Milwaukee, WI 53233 USA
[4] Levine Childrens Hosp, Charlotte, NC USA
[5] Univ Nebraska Med Ctr, Omaha, NE USA
[6] St Louis Childrens Hosp, St Louis, MO 63178 USA
[7] Northwestern Univ, Feinberg Sch Med, Chicago, IL 60611 USA
[8] Ann & Robert H Lurie Childrens Hosp Chicago, Chicago, IL USA
[9] Med Coll Wisconsin, Milwaukee, WI 53226 USA
[10] Northwestern Univ, Dept Pediat, Feinberg Sch Med, Chicago, IL 60611 USA
基金
美国国家卫生研究院;
关键词
pediatric; solid organ transplant; discharge transition; HOSPITAL DISCHARGE; PATIENT PERCEPTIONS; RANDOMIZED-TRIAL; HEART-FAILURE; QUALITY; READMISSIONS; MANAGEMENT; READINESS; INTERVENTION; CANDIDATES;
D O I
10.1111/petr.12397
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Pediatric SOT recipients are medically fragile and present with complex care issues requiring high-level management at home. Parents of hospitalized children have reported inadequate preparation for discharge, resulting in problems transitioning from hospital to home and independently self-managing their child's complex care needs. The aim of this study was to investigate factors associated with the transition from hospital to home and chronic illness care for parents of heart, kidney, liver, lung, or multivisceral recipients. Fifty-one parents from five pediatric transplant centers completed questionnaires on the day of hospital discharge and telephone interviews at threewk, threemonths, and sixmonths following discharge from the hospital. Care coordination (p=0.02) and quality of discharge teaching (p<0.01) was significantly associated with parent readiness for discharge. Readiness for hospital discharge was subsequently significantly associated with post-discharge coping difficulty (p=0.02) at three wk, adherence with medication administration (p=0.03) at threemonths, and post-discharge coping difficulty (p=0.04) and family management (p=0.02) at sixmonths post-discharge. The results underscore the important aspect of education and care coordination in preparing patients and families to successfully self-manage after hospital discharge. Assessing parental readiness for hospital discharge is another critical component for identifying risk of difficulties in managing post-discharge care.
引用
收藏
页码:118 / 129
页数:12
相关论文
共 47 条
  • [1] [Anonymous], 2002, INT J INTEGR CARE
  • [2] Baker AL, 1991, NEONATAL NETW, V65, P191
  • [3] A national conference to determine research priorities in pediatric solid organ transplantation
    Bartosh, Sharon M.
    Ryckman, Frederick C.
    Shaddy, Robert
    Michaels, Marian G.
    Platt, Jeffrey L.
    Sweet, Stuart C.
    [J]. PEDIATRIC TRANSPLANTATION, 2008, 12 (02) : 153 - 166
  • [4] Benning C R, 1994, Clin Nurse Spec, V8, P280
  • [5] Bent K N, 1996, MCN Am J Matern Child Nurs, V21, P80, DOI 10.1097/00005721-199603000-00011
  • [6] Age-Related Differences in Perception of Quality of Discharge Teaching and Readiness for Hospital Discharge
    Bobay, Kathleen L.
    Jerofke, Teresa A.
    Weiss, Marianne E.
    Yakusheva, Olga
    [J]. GERIATRIC NURSING, 2010, 31 (03) : 178 - 187
  • [7] The clinical utility of the Stress Process Model in family caregivers of liver transplant candidates
    Bolden, Lois
    Wicks, Mona Newsome
    [J]. PROGRESS IN TRANSPLANTATION, 2008, 18 (02) : 74 - 79
  • [8] Patient perceptions of quality in discharge instruction
    Clark, PA
    Drain, M
    Gesell, SB
    Mylod, D
    Kaldenberg, DO
    Hamilton, J
    [J]. PATIENT EDUCATION AND COUNSELING, 2005, 59 (01) : 56 - 68
  • [9] Preparing patients and caregivers to participate in care delivered across settings: The care transitions intervention
    Coleman, EA
    Smith, JD
    Frank, JC
    Min, SJ
    Parry, C
    Kramer, AM
    [J]. JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2004, 52 (11) : 1817 - 1825
  • [10] Assessing the quality of preparation for posthospital care from the patient's perspective - The care transitions measure
    Coleman, EA
    Mahoney, E
    Parry, C
    [J]. MEDICAL CARE, 2005, 43 (03) : 246 - 255