Bibliotherapy for improving caregiving appraisal of informal caregivers of people with dementia: A pilot randomized controlled trial

被引:9
作者
Wang, Shanshan [1 ,2 ]
Cheung, Daphne Sze Ki [3 ]
Leung, Angela Yee Man [2 ]
Davidson, Patricia M. [4 ]
机构
[1] Zhengzhou Univ, Sch Nursing & Hlth, Zhengzhou, Peoples R China
[2] Hong Kong Polytech Univ, Sch Nursing, WHO Collaborating Ctr Community Hlth Serv, Kowloon,Hung Hom, Hong Kong, Peoples R China
[3] Hong Kong Polytech Univ, Sch Nursing, Kowloon, A127, Hong Kong, Peoples R China
[4] Johns Hopkins Univ, Sch Nursing, Baltimore, MD USA
关键词
bibliotherapy; caregivers; caregiving appraisal; coping; dementia; FAMILY CAREGIVERS; SAMPLE-SIZE; SELF-HELP; HEALTH; SCALE; PSYCHOSIS; QUALITY; LIFE; CARE;
D O I
10.1002/nur.22143
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Caregiving appraisal is a key driver to moderating caregiving outcomes. The caregiving appraisal of informal caregivers of people with dementia requires increased attention. This study aimed to explore the feasibility and acceptability of an evidence-based bibliotherapy protocol, and test the efficacy on improving caregiving appraisal. A two-arm pilot randomized controlled trial was adopted. Sixty informal caregivers were randomized to either the intervention group, receiving eight weekly professional-guided bibliotherapy sessions in addition to usual care; or the usual care group. The professional-guided bibliotherapy sessions were weekly sessions in which caregivers self-read the designated chapter and then received telephone coaching. Caregiving appraisal, coping, psychological well-being, positive aspects of caregiving, knowledge of dementia, and attitude toward dementia were assessed both at baseline and immediately after the intervention. Assessors were blinded to group allocation. Individual interviews among 10 participants from the intervention group were conducted to explorecaregivers' acceptance of the intervention. Descriptive statistics, chi(2) test, Mann-Whitney U test, independent t test, generalized estimating equation, and content analysis were used for data analysis. This study pioneered the use of bibliotherapy among informal caregivers of people with dementia. The participant recruitment rate was 69.8%. The attrition rate of the intervention group was 20%. Bibliotherapy had a significant time-by-group interaction effect on caregiving appraisal (p < 0.001), coping (p = 0.003), positive aspects of caregiving (p = 0.001), knowledge of dementia (p = 0.017), and attitude toward dementia (p < 0.001). The effect on psychological well-being, however, was only significant on the personal growth subscale (p = 0.025). The acceptability was also confirmed. No adverse event was documented.
引用
收藏
页码:692 / 703
页数:12
相关论文
共 41 条
[31]  
Stolley Jacqueline M, 2002, Am J Alzheimers Dis Other Demen, V17, P110, DOI 10.1177/153331750201700211
[32]   Effectiveness of Supporting Informal Caregivers of People with Dementia: A Systematic Review of Randomized and Non-Randomized Controlled Trials [J].
Vandepitte, Sophie ;
Van den Noortgate, Nele ;
Putman, Koen ;
Verhaeghe, Sofie ;
Faes, Kristof ;
Annemans, Lieven .
JOURNAL OF ALZHEIMERS DISEASE, 2016, 52 (03) :929-965
[33]  
Wang L, 2005, Explore the Related Factors between Caregivers' Appraisal of Care and Quality of Family Care on Older People with Disabilities
[34]   Factors associated with caregiving appraisal of informal caregivers: A systematic review [J].
Wang, Shanshan ;
Cheung, Daphne Sze Ki ;
Leung, Angela Yee Man ;
Davidson, Patricia M. .
JOURNAL OF CLINICAL NURSING, 2020, 29 (17-18) :3201-3221
[35]   The effects of bibliotherapy on the mental well-being of informal caregivers of people with neurocognitive disorder: A systematic review and meta-analysis [J].
Wang, Shanshan ;
Bressington, Daniel Thomas ;
Leung, Angela Yee Man ;
Davidson, Patricia M. ;
Cheung, Daphne Sze Ki .
INTERNATIONAL JOURNAL OF NURSING STUDIES, 2020, 109
[36]   Overview of dementia care under the three-tier long-term care system of China [J].
Wang, Shanshan ;
Cheung, Daphne Sze Ki ;
Leung, Angela Y. M. .
PUBLIC HEALTH NURSING, 2019, 36 (02) :199-206
[37]   Estimating the sample size for a pilot randomised trial to minimise the overall trial sample size for the external pilot and main trial for a continuous outcome variable [J].
Whitehead, Amy L. ;
Julious, Steven A. ;
Cooper, Cindy L. ;
Campbell, Michael J. .
STATISTICAL METHODS IN MEDICAL RESEARCH, 2016, 25 (03) :1057-1073
[38]   The effect of cognitive appraisal in middle-aged women stroke survivors and the psychological health of their caregivers: a follow-up study [J].
Wu, Ming-Hsiu ;
Lee, Sheuan ;
Su, Hui-Yi ;
Pai, Hsiang-Chu .
JOURNAL OF CLINICAL NURSING, 2015, 24 (21-22) :3155-3164
[39]   Family caregiver challenges in dementia care in Australia and China: a critical perspective [J].
Xiao, Lily Dongxia ;
Wang, Jing ;
He, Guo-Ping ;
De Bellis, Anita ;
Verbeeck, Jenny ;
Kyriazopoulos, Helena .
BMC GERIATRICS, 2014, 14
[40]  
Xie Y., 1998, Chinese Journal of Clinical Psychology, V6, P114, DOI DOI 10.16128/J.CNKI.1005-3611.1998.02.018