Transitioning the patient with Turner's syndrome from pediatric to adult care

被引:0
作者
Rubin, K [1 ]
机构
[1] Univ Connecticut, Sch Med, Div Pediat Endocrinol, Farmington, CT USA
关键词
Turner's syndrome; transition; dysmetabolic syndrome; osteoporosis; neurocognitive profile; adult morbidities; transition passport; quality of life;
D O I
暂无
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
The level of medical and neuropsychological complexity throughout the life span of a patient with Turner's syndrome (TS) provides the rationale for a more structured transition from pediatric to adult health care. During late adolescence, the focus of care shifts from maximizing final adult height to completing feminization with estrogen therapy, detecting early antecedents of associated adult conditions, implementing needed therapeutic lifestyle changes, and assessing psychobehavioral risk. An increased prevalence of the dysmetabolic syndrome and osteoporosis is observed in TS. The prevention of obesity and assurance of adequate calcium intake and weight-bearing activities combined with early detection and treatment of specific abnormalities can ameliorate these associated adult morbidities. During the final phase of transition, the pediatric endocrinologist should engage the patient with TS in developing a comprehensive adult care roadmap or 'transition passport', which serves as a powerful educational tool. The aim of refining the transition process is to improve adult outcomes and quality of life for patients with TS.
引用
收藏
页码:651 / 659
页数:9
相关论文
empty
未找到相关数据