Communicating with patients with idiopathic pulmonary fibrosis: can we do it better?

被引:5
作者
Wijsenbeek, Marlies S. [1 ]
Bonella, Francesco [2 ]
Orsatti, Leticia [3 ]
Russell, Anne-Marie [4 ]
Valenzuela, Claudia [5 ]
Wuyts, Wim A. [6 ]
Baile, Walter F. [7 ]
机构
[1] Erasmus MC, Univ Med Ctr, Dept Resp Med, Rotterdam, Netherlands
[2] Duisburg Essen Univ, Univ Hosp, Ctr Interstitial & Rare Lung Dis, Ruhrlandklin, Essen, Germany
[3] Boehringer Ingelheim Int GmbH, Ingelheim, Germany
[4] Univ Exeter, Coll Med & Hlth, Exeter, Devon, England
[5] Univ Autonoma Madrid, Hosp Univ Princesa, Pulmonol Dept, Madrid, Spain
[6] Univ Hosp Leuven, Dept Pulm Med, Unit Interstitial Lung Dis, Leuven, Belgium
[7] Univ Texas MD Anderson Canc Ctr, Houston, TX 77030 USA
关键词
LUNG-DISEASE; PALLIATIVE CARE; OF-LIFE; INFORMATION; SKILLS; RELIABILITY; DEPRESSION; DYSPNEA; RECALL; NEEDS;
D O I
10.1183/23120541.00422-2021
中图分类号
R56 [呼吸系及胸部疾病];
学科分类号
摘要
Communications between clinicians and patients with idiopathic pulmonary fibrosis (IPF) have the potential to be challenging. The variable course and poor prognosis of IPF complicate discussions around life expectancy hut should not prevent clinicians from having meaningful conversations about patients' fears and needs, while acknowledging uncertainties. Patients want information about the course of their disease and management options, but the provision of information needs to be individualised to the needs and preferences of the patient. Communication from clinicians should be empathetic and take account of the patient's perceptions and concerns. Models, tools and protocols are available that can help clinicians to improve their interactions with patients. In this article, we consider the difficulties inherent in discussions with patients with IPF and their loved ones, and how clinicians might communicate with patients more effectively, from breaking the news about the diagnosis to providing support throughout the course of the disease.
引用
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页数:8
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