Communicating with patients with idiopathic pulmonary fibrosis: can we do it better?

被引:5
|
作者
Wijsenbeek, Marlies S. [1 ]
Bonella, Francesco [2 ]
Orsatti, Leticia [3 ]
Russell, Anne-Marie [4 ]
Valenzuela, Claudia [5 ]
Wuyts, Wim A. [6 ]
Baile, Walter F. [7 ]
机构
[1] Erasmus MC, Univ Med Ctr, Dept Resp Med, Rotterdam, Netherlands
[2] Duisburg Essen Univ, Univ Hosp, Ctr Interstitial & Rare Lung Dis, Ruhrlandklin, Essen, Germany
[3] Boehringer Ingelheim Int GmbH, Ingelheim, Germany
[4] Univ Exeter, Coll Med & Hlth, Exeter, Devon, England
[5] Univ Autonoma Madrid, Hosp Univ Princesa, Pulmonol Dept, Madrid, Spain
[6] Univ Hosp Leuven, Dept Pulm Med, Unit Interstitial Lung Dis, Leuven, Belgium
[7] Univ Texas MD Anderson Canc Ctr, Houston, TX 77030 USA
关键词
LUNG-DISEASE; PALLIATIVE CARE; OF-LIFE; INFORMATION; SKILLS; RELIABILITY; DEPRESSION; DYSPNEA; RECALL; NEEDS;
D O I
10.1183/23120541.00422-2021
中图分类号
R56 [呼吸系及胸部疾病];
学科分类号
摘要
Communications between clinicians and patients with idiopathic pulmonary fibrosis (IPF) have the potential to be challenging. The variable course and poor prognosis of IPF complicate discussions around life expectancy hut should not prevent clinicians from having meaningful conversations about patients' fears and needs, while acknowledging uncertainties. Patients want information about the course of their disease and management options, but the provision of information needs to be individualised to the needs and preferences of the patient. Communication from clinicians should be empathetic and take account of the patient's perceptions and concerns. Models, tools and protocols are available that can help clinicians to improve their interactions with patients. In this article, we consider the difficulties inherent in discussions with patients with IPF and their loved ones, and how clinicians might communicate with patients more effectively, from breaking the news about the diagnosis to providing support throughout the course of the disease.
引用
收藏
页数:8
相关论文
共 50 条
  • [1] Impact of Depression on Patients With Idiopathic Pulmonary Fibrosis
    Tzouvelekis, Argyris
    Karampitsakos, Theodoros
    Kourtidou, Sofia
    Bouros, Evangelos
    Tzilas, Vasilios
    Katsaras, Matthaios
    Antonou, Chrysoula
    Dassiou, Maria
    Bouros, Demosthenes
    FRONTIERS IN MEDICINE, 2020, 7
  • [2] Qualitative European survey of patients with idiopathic pulmonary fibrosis: patients' perspectives of the disease and treatment
    Russell, Anne-Marie
    Ripamonti, Elena
    Vancheri, Carlo
    BMC PULMONARY MEDICINE, 2016, 16
  • [3] Action plans in idiopathic pulmonary fibrosis: a qualitative study-'I do what I can do'
    Kalluri, Meena
    Younus, Sarah
    Archibald, Nathan
    Richman-Eisenstat, Janice
    Pooler, Charlotte
    BMJ SUPPORTIVE & PALLIATIVE CARE, 2021, : E945 - E952
  • [4] Palliative Care for Idiopathic Pulmonary Fibrosis Patients: Pulmonary Physicians' View
    Akiyama, Norimichi
    Fujisawa, Tomoyuki
    Morita, Tatsuya
    Mori, Kazutaka
    Yasui, Hideki
    Hozumi, Hironao
    Suzuki, Yuzo
    Karayama, Masato
    Furuhashi, Kazuki
    Enomoto, Noriyuki
    Nakamura, Yutaro
    Inui, Naoki
    Suda, Takafumi
    JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2020, 60 (05) : 933 - 940
  • [5] Depression in patients with idiopathic pulmonary fibrosis
    Akhtar, Akhtar A.
    Ali, Mohammad A.
    Smith, Robin P.
    CHRONIC RESPIRATORY DISEASE, 2013, 10 (03) : 127 - 133
  • [6] Cognitive impairment and depression in patients with idiopathic pulmonary fibrosis
    Shaheen, Hala A.
    Elessawy, Assem F.
    Abdel-Wahed, Wafaa
    Mohamed, Asmaa N.
    Elhefny, Radwa A.
    MINERVA PSYCHIATRY, 2021, 62 (02): : 79 - 85
  • [7] Severe idiopathic pulmonary fibrosis: what can be done?
    Caminati, Antonella
    Cassandro, Roberto
    Torre, Olga
    Harari, Sergio
    EUROPEAN RESPIRATORY REVIEW, 2017, 26 (145)
  • [8] Air hunger, unwelcome guests, clogged pipes and idiopathic inflammatory myositis: Can we do better?
    Perez, Evans R. Fernandez
    RESPIROLOGY, 2012, 17 (03) : 391 - 392
  • [9] Do we remember templates better so that we can reject distractors better?
    Rajsic, Jason
    Woodman, Geoffrey F.
    ATTENTION PERCEPTION & PSYCHOPHYSICS, 2020, 82 (01) : 269 - 279
  • [10] Effects of pulmonary rehabilitation in patients with idiopathic pulmonary fibrosis
    Nishiyama, Osamu
    Kondoh, Yasuhiro
    Kimura, Tomoki
    Kato, Keisuke
    Kataoka, Kensuke
    Ogawa, Tomoya
    Watanabe, Fumiko
    Arizono, Shinichi
    Nishimura, Koichi
    Taniguchi, Hiroyuki
    RESPIROLOGY, 2008, 13 (03) : 394 - 399