Using Liminality and Subjunctivity to Better Understand How Patients With Cancer Experience Uncertainty Throughout Their Illness Trajectory

被引:37
作者
Dauphin, Stephanie [1 ]
Van Wolputte, Steven [2 ]
Jansen, Leontien [1 ]
De Burghgraeve, Tine [1 ]
Buntinx, Frank [1 ,3 ]
van den Akker, Marjan [1 ,3 ,4 ]
机构
[1] Katholieke Univ Leuven, Acad Ctr Gen Practice, Leuven, Belgium
[2] Katholieke Univ Leuven, Inst Anthropol Res, Leuven, Belgium
[3] Maastricht Univ, Dept Family Med, Sch CAPHRI, Maastricht, Netherlands
[4] Goethe Univ Frankfurt, Inst Gen Practice, Frankfurt, Germany
关键词
illness experiences; cancer patients; uncertainty; liminality; subjunctivity; qualitative research; Europe; BREAST-CANCER; MANAGEMENT INTERVENTION; BIOGRAPHICAL DISRUPTION; AFRICAN-AMERICAN; PROSTATE; WOMEN; CARE; ADJUSTMENT; FRAMEWORK; BENEFITS;
D O I
10.1177/1049732319880542
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Uncertainty is a central theme in the illness experiences of older cancer patients throughout their illness trajectory. Mishel's popular theory on uncertainty during illness approaches uncertainty as an outcome and is characterized by the patient's inability to find meaning in illness events. This study used the concepts of liminality and subjunctivity to explore uncertainty throughout the illness trajectory of cancer patients. We interviewed 18 older (age range = 57-92 years) patients with breast cancer or gastro-intestinal cancer 3 to 4 years post diagnosis. Our analysis is based on the QUAGOL guide that draws on elements of grounded theory such as constant comparison. We found that liminality and subjunctivity provide a useful frame for understanding uncertainty with a specific focus on its productive potential and meaning making. Health care professionals should be open to acquiring a complete picture of patients' diverse and dynamic experiences of uncertainty in the different stages of their illness trajectory.
引用
收藏
页码:356 / 365
页数:10
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