Identifying and Quantifying Adolescent and Young Adult Patient Preferences in Cancer Care: Development of a Conjoint Analysis-Based Decision-Making Tool

被引：9

作者：

Snaman, Jennifer M. ^{[1
,2
]}

Blazin, Lindsay ^{[3
]}

Holder, Rachel L. ^{[1
]}

Wolfe, Joanne ^{[1
]}

Baker, Justin N. ^{[3
]}

机构：

[1] Dana Farber Canc Inst, Dept Psychosocial Oncol & Palliat Care, 450 Brookline Ave,Dana 2081, Boston, MA 02115 USA

[2] Dana Farber Canc Inst, Dept Pediat Oncol, Boston, MA 02115 USA

[3] St Jude Childrens Res Hosp, Dept Oncol, Div Qual Life & Palliat Care, 332 N Lauderdale St, Memphis, TN 38105 USA

来源：

JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY | 2019年 / 8卷 / 02期

关键词：

communication; quality of life; decision-making; conjoint analysis; end-of-life care; advance care planning; OF-LIFE CARE; PEDIATRIC PALLIATIVE CARE; PHASE-I; INVOLVEMENT; INTENSITY; PARENTS;

D O I：

10.1089/jayao.2018.0116

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

Compared with younger children and older adults, adolescent and young adult (AYA) patients with cancer receive more intensive end-of-life (EOL) care. We hypothesize that enhanced understanding of AYA preferences, increased engagement of these patients in decision-making, and improved communication of their preferences with family members and the medical team will lead to increased provision of goal-concordant care and decreased intensity of EOL care. In this study, we describe the development of a novel tool that quantifies the relative importance of numerous factors considered by AYA patients with cancer, their parents, and health care providers when choosing between treatment options.

引用

页码：212 / 216

页数：5

共 23 条

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