Family Members' Experience With Hospice in Nursing Homes

被引：13

作者：

Gage, L. Ashley ^{[1
]}

Washington, Karla ^{[2
]}

Oliver, Debra Parker ^{[2
]}

Kruse, Robin ^{[2
]}

Lewis, Alexandra ^{[2
]}

Demiris, George ^{[3
]}

机构：

[1] Univ Nebraska, Dept Social Work, Kearney, NE USA

[2] Univ Missouri, Dept Family & Community Med, Columbia, MO USA

[3] Univ Washington, Sch Med, Sch Nursing & Biomed & Hlth Informat, Biobehav Nursing & Hlth Syst, Seattle, WA USA

来源：

AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE | 2016年 / 33卷 / 04期

关键词：

hospice; end of life; nursing home; family; communication; collaboration; OF-LIFE CARE; LONG-TERM-CARE; PERCEPTIONS; RESIDENTS; PERSPECTIVES;

D O I：

10.1177/1049909114560213

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Research has documented numerous benefits and challenges associated with receipt of hospice care in nursing homes; however, study of this partnership from the perspective of residents' family members has been limited. The purpose of this qualitative investigation was to explore family members' experience with hospice services received in the nursing home setting. Researchers conducted a secondary data analysis of 175 family member interviews using a thematic analytic approach. Findings highlighted the critical role of communication in supporting residents and their family members. Care coordination, support and oversight, and role confusion also impacted family members' experience of hospice care in the nursing home. Efforts directed at enhancing communication and more clearly articulating the roles of members of the health care team are indicated.

引用

页码：354 / 362

页数：9

共 24 条

[1] Development of a theoretical framework describing relatives' involvement in palliative care
Andershed, B
Ternestedt, BM
[J]. JOURNAL OF ADVANCED NURSING, 2001, 34 (04) : 554 - 562
[2] Families' perception of the added value of hospice in the nursing home
Baer, WM
Hanson, LC
[J]. JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2000, 48 (08) : 879 - 882
[3] Braun V, 2006, QUAL RES PSYCHOL, V3, DOI [DOI 10.1191/1478088706QP063OA, 10.1191/1478088706qp063oa]
[4] Improving the use of hospice services in nursing homes - A randomized controlled trial
Casarett, D
Karlawish, J
Morales, K
Crowley, R
Mirsch, T
Asch, DA
[J]. JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2005, 294 (02): : 211 - 217
[5] Differences between patients referred to hospice from academic vs. non-academic settings
Casarett, DJ
[J]. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2001, 21 (03) : 197 - 203
[6] Hospice Use by Older Adults Knocking on the Door of the Nursing Facility: Implications for Social Work Practice
Chapin, Rosemary K.
Gordon, Theresa
Landry, Sarah
Rachlin, Roxanne
[J]. JOURNAL OF SOCIAL WORK IN END-OF-LIFE & PALLIATIVE CARE, 2007, 3 (02) : 19 - 38
[7] A Pilot Study to Explore Next of Kin's Perspectives on End-of-Life Care in the Nursing Home
Flock, Petra
Terrien, Jill M.
[J]. JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION, 2011, 12 (02) : 135 - 142
[8] End-of-life decision making for nursing home residents with dementia
Forbes, S
Bern-Klug, M
Gessert, C
[J]. JOURNAL OF NURSING SCHOLARSHIP, 2000, 32 (03) : 251 - 258
[9] Hwang D, 2014, J PAIN SYMPTOM MANAG, DOI [10.1016/j.jpainsym-man.2014.04.003, DOI 10.1016/J.JPAINSYM-MAN.2014.04.003]
[10] JOHNSON R, 2007, M LONG TERM CAR NEED

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