Trajectories, Long-Term Outcomes and Family Experiences of 76 Adults with Autism Spectrum Disorder

被引：53

作者：

Chamak, Brigitte ^{[1
]}

Bonniau, Beatrice ^{[1
]}

机构：

[1] Paris Descartes Univ, EHESS, CNRS UMR 8211, CERMES3,INSERM U988, 45 Rue St Peres, F-75270 Paris 06, France

来源：

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2016年 / 46卷 / 03期

关键词：

Autism; Asperger syndrome; Outcome; Trajectory; Adults; ASPERGER-SYNDROME; YOUNG-CHILDREN; INDIVIDUALS; POPULATION; ADOLESCENTS; PARENTS; ASSOCIATIONS; PREDICTORS; MOTHERS; FATHERS;

D O I：

10.1007/s10803-015-2656-6

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

The aim of this retrospective study was to retrace the trajectories and long-term outcomes of individuals with autism in France, and to explore the family experiences. Data obtained from parents enables us to follow the trajectories of 76 adults. Two-thirds of adults with severe autism had a very poor outcome. Those with moderate autism had a better outcome. In adulthood, the majority were in residential accommodation. None were living independently. The trajectories of people with Asperger syndrome or high-functioning autism were more positive since all of them attended school for a long time and some went to university. All of them had a good outcome but they remained dependent on aging parents who had few available supports.

引用

页码：1084 / 1095

页数：12

共 52 条

[1] Patterns of Growth in Adaptive Social Abilities Among Children with Autism Spectrum Disorders [J].

Anderson, Deborah K. ;

Oti, Rosalind S. ;

Lord, Catherine ;

Welch, Kathleen .

JOURNAL OF ABNORMAL CHILD PSYCHOLOGY, 2009, 37 (07) :1019-1034

[2]

[Anonymous], 2014, FRONTIERS PEDIAT

[3]

Aussilloux C., 1991, REV NEUROPSYCHIATRIE, V106, P27

[4] Developmental Trajectories of Adaptive Behaviors from Early Childhood to Adolescence in a Cohort of 152 Children with Autism Spectrum Disorders [J].

Baghdadli, Amaria ;

Assouline, Brigitte ;

Sonie, Sandrine ;

Pernon, Eric ;

Darrou, Celine ;

Michelon, Cecile ;

Picot, Marie-Christine ;

Aussilloux, Charles ;

Pry, Rene .

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2012, 42 (07) :1314-1325

[5] Longitudinal examination of the behavioral, language, and social changes in a population of adolescents and young adults with autistic disorder [J].

BallabanGil, K ;

Rapin, I ;

Tuchman, R ;

Shinnar, S .

PEDIATRIC NEUROLOGY, 1996, 15 (03) :217-223

[6] Autism after adolescence: Population-based 13- to 22-year follow-up study of 120 individuals with autism diagnosed in childhood [J].

Billstedt, E ;

Gillberg, C ;

Gillberg, C .

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2005, 35 (03) :351-360

[7] Aspects of quality of life in adults diagnosed with autism in childhood A population-based study [J].

Billstedt, Eva ;

Gillberg, I. Carina ;

Gillberg, Christopher .

AUTISM, 2011, 15 (01) :7-20

[8] Brief Report: The Medical Care of Adults with Autism Spectrum Disorders: Identifying the Needs [J].

Bruder, Mary Beth ;

Kerins, Gerard ;

Mazzarella, Cynthia ;

Sims, Jessica ;

Stein, Neil .

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2012, 42 (11) :2498-2504

[9] Early identification and early intervention in autism spectrum disorders: Accurate and effective? [J].

Camarata, Stephen .

INTERNATIONAL JOURNAL OF SPEECH-LANGUAGE PATHOLOGY, 2014, 16 (01) :1-10

[10] Bullying Experiences Among Children and Youth with Autism Spectrum Disorders [J].

Cappadocia, M. Catherine ;

Weiss, Jonathan A. ;

Pepler, Debra .

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2012, 42 (02) :266-277

← 1 2 3 4 5 6 →