Damage in hidradenitis suppurativa: a narrative review emphasizing the need for a novel outcome measure

被引:1
|
作者
Fritsche, Madelaine [1 ]
Okun, Martin [2 ]
Kirby, Joslyn S. [3 ]
机构
[1] Penn State Coll Med, Hershey, PA USA
[2] Ft HealthCare, Ft Atkinson, WI USA
[3] Penn State Hlth Milton S Hershey Med Ctr, Dept Dermatol, Hershey, PA 17033 USA
关键词
CUTANEOUS LUPUS-ERYTHEMATOSUS; SCAR ASSESSMENT SCALE; DISEASE DAMAGE; SEVERITY INDEX; PATIENT; HYDROXYCHLOROQUINE; INSTRUMENTS; VALIDATION; MANAGEMENT; GUIDELINE;
D O I
10.1111/bjd.21043
中图分类号
R75 [皮肤病学与性病学];
学科分类号
100206 ;
摘要
Cutaneous damage caused by hidradenitis suppurativa (HS) is an important contributor to disease burden, independent of active lesions. Outcome measures used to specifically assess damage are becoming commonplace in the assessment of inflammatory diseases. However, no standardized method for assessing HS damage currently exists. The purpose of this study was to review outcome measures in HS that include constructs of both active disease and damage, review damage-specific instruments used in other inflammatory and destructive diseases, and review instruments used to assess scars of various aetiologies. This ultimately provides insight into how attributes of different tools can be applied to develop an outcome measure specific to HS damage.
引用
收藏
页码:288 / 294
页数:7
相关论文
共 43 条
  • [31] Measuring Quality of Life in Hidradenitis Suppurativa: Development and Validation of a Disease-specific Patient-reported Outcome Measure for Practice and Research
    Otten, Marina
    Augustin, Matthias
    Blome, Christine
    Topp, Janine
    Niklaus, Marina
    Hilbring, Caroline
    Bechara, Falk G.
    Pinter, Andreas
    Zouboulis, Christos C.
    Anzengruber, Florian
    Kirsten, Natalia
    ACTA DERMATO-VENEREOLOGICA, 2023, 103
  • [32] A Scoping Review of Non-invasive Imaging Modalities in Dermatological Disease: Potential Novel Biomarkers in Hidradenitis Suppurativa
    Grand, David
    Navrazhina, Kristina
    Frew, John W.
    FRONTIERS IN MEDICINE, 2019, 6
  • [33] The need for improved patient reported outcome measures in patients with extremity sarcoma: A narrative review
    Blight, Thomas J.
    Choong, Peter F. M.
    ANZ JOURNAL OF SURGERY, 2021, 91 (10) : 2021 - 2025
  • [34] Validation of the IHS4 score as an outcome measure for Hidradenitis Suppurativa (HS): Application in treatment with MABP1 targeting interleukin-1ALPHA
    Kanni, T.
    Argyropoulou, M.
    Stecher, M.
    Dinarello, C.
    Simard, J.
    Giamarellos-Bourboulis, E.
    EXPERIMENTAL DERMATOLOGY, 2018, 27 : 20 - 20
  • [35] EEG Markers in Emotionally Unstable Personality Disorder-A Possible Outcome Measure for Neurofeedback: A Narrative Review
    Boland, Cailin
    Jalihal, Virupakshi
    Organ, Catriona
    Oak, Katy
    McLean, Brendan
    Laugharne, Richard
    Woldman, Wessel
    Beck, Randy
    Shankar, Rohit
    CLINICAL EEG AND NEUROSCIENCE, 2021, 52 (04) : 254 - 273
  • [36] The need for novel influenza vaccines in low- and middle-income countries: A narrative review
    Spinardi, Julia R.
    Thakkar, Karan B.
    Welch, Verna L.
    Jagun, Oladayo
    Kyaw, Moe H.
    BRAZILIAN JOURNAL OF INFECTIOUS DISEASES, 2025, 29 (01):
  • [37] Novel digital imaging techniques to assess the outcome in oral rehabilitation with dental implants: a narrative review
    Benic, Goran I.
    Elmasry, Moustafa
    Haemmerle, Christoph H. F.
    CLINICAL ORAL IMPLANTS RESEARCH, 2015, 26 : 86 - 96
  • [38] Clinical response rates, placebo response rates, and significantly associated covariates are dependent on choice of outcome measure in hidradenitis suppurativa: A post hoc analysis of PIONEER 1 and 2 individual patient data
    Frew, John W.
    Jiang, Caroline S.
    Singh, Neha
    Grand, David
    Navrazhina, Kristina
    Vaughan, Roger
    Krueger, James G.
    JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY, 2020, 82 (05) : 1150 - 1157
  • [39] Safety outcome trials in four mainline medical journals 30 years apart: a narrative review and the need for the transparency of informed consents
    Esatoglu, Sinem Nihal
    Ozdede, Ayse
    Ozguler, Yesim
    Tascilar, Koray
    Yazici, Hasan
    TRIALS, 2025, 26 (01)
  • [40] Clinical response rates, placebo response rates and significantly associated covariates are dependent upon choice of outcome measure in hidradenitis suppurativa: a post-hoc analysis of PIONEER 1 and 2 individual patient data
    Frew, John W.
    Singh, Neha
    Jiang, Caroline S.
    Navrazhina, Kristina
    Grand, David
    Vaughan, Roger
    Krueger, James G.
    EXPERIMENTAL DERMATOLOGY, 2020, 29 : 51 - 51