Damage in hidradenitis suppurativa: a narrative review emphasizing the need for a novel outcome measure

被引:1
|
作者
Fritsche, Madelaine [1 ]
Okun, Martin [2 ]
Kirby, Joslyn S. [3 ]
机构
[1] Penn State Coll Med, Hershey, PA USA
[2] Ft HealthCare, Ft Atkinson, WI USA
[3] Penn State Hlth Milton S Hershey Med Ctr, Dept Dermatol, Hershey, PA 17033 USA
关键词
CUTANEOUS LUPUS-ERYTHEMATOSUS; SCAR ASSESSMENT SCALE; DISEASE DAMAGE; SEVERITY INDEX; PATIENT; HYDROXYCHLOROQUINE; INSTRUMENTS; VALIDATION; MANAGEMENT; GUIDELINE;
D O I
10.1111/bjd.21043
中图分类号
R75 [皮肤病学与性病学];
学科分类号
100206 ;
摘要
Cutaneous damage caused by hidradenitis suppurativa (HS) is an important contributor to disease burden, independent of active lesions. Outcome measures used to specifically assess damage are becoming commonplace in the assessment of inflammatory diseases. However, no standardized method for assessing HS damage currently exists. The purpose of this study was to review outcome measures in HS that include constructs of both active disease and damage, review damage-specific instruments used in other inflammatory and destructive diseases, and review instruments used to assess scars of various aetiologies. This ultimately provides insight into how attributes of different tools can be applied to develop an outcome measure specific to HS damage.
引用
收藏
页码:288 / 294
页数:7
相关论文
共 43 条
  • [21] Tunnels in Hidradenitis Suppurativa: Active Inflammatory Entities with Specific Molecular and Genetic Profiles - A Narrative Review
    Krajewski, Piotr K.
    Szepietowski, Jacek C.
    Martorell, Antonio
    DERMATOLOGY, 2023, 239 (03) : 323 - 327
  • [22] Evaluation of Cannabis-Related Product Use Among Patients With Hidradenitis Suppurativa: A Narrative Review
    Shojaei, Delaram
    Zabihi, Haleh
    Maida, Vincent
    Kirchhof, Mark G.
    Alavi, Afsaneh
    JOURNAL OF CUTANEOUS MEDICINE AND SURGERY, 2024,
  • [23] Immunomodulatory drugs alone and adjuvant to surgery for hidradenitis suppurativa/acne inversa-A narrative review
    Wollina, Uwe
    Brzezinski, Piotr
    Koch, Andre
    Philipp-Dormston, Wolfgang G.
    DERMATOLOGIC THERAPY, 2020, 33 (06)
  • [24] Novel and Off-Label Biologic Use in the Management of Hidradenitis Suppurativa, Pyoderma Gangrenosum, Lichen Planus, and Seborrheic Dermatitis: A Narrative Review
    Rohan Mital
    Ashley Gray
    Abena Minta
    Farah Almhana
    Sabrina Amin
    Jourdan Hydol-Smith
    Teja Mallela
    Benjamin H. Kaffenberger
    Dermatology and Therapy, 2023, 13 : 77 - 94
  • [25] Novel and Off-Label Biologic Use in the Management of Hidradenitis Suppurativa, Pyoderma Gangrenosum, Lichen Planus, and Seborrheic Dermatitis: A Narrative Review
    Mital, Rohan
    Gray, Ashley
    Minta, Abena
    Almhana, Farah
    Amin, Sabrina
    Hydol-Smith, Jourdan
    Mallela, Teja
    Kaffenberger, Benjamin H.
    DERMATOLOGY AND THERAPY, 2023, 13 (01) : 77 - 94
  • [26] Use of Patient-Reported Outcome Measures in the Surgical Treatment of Hidradenitis Suppurativa: A Systematic Review
    Claessens, Anouk A. E.
    van Alphen, Tert C.
    Lapid, Oren
    Hoogbergen, Maarten M.
    Ovadja, Zachri N.
    DERMATOLOGIC SURGERY, 2022, 48 (04) : 411 - 417
  • [27] Diagnostic delay in hidradenitis suppurativa: A systematic review and novel data from a Greek cohort
    Tsentemeidou, Aikaterini
    Vakirlis, Efstratios
    Bakirtzi, Katerina
    Chatzi-Sotiriou, Themis
    Lallas, Aimilios
    Kiritsi, Dimitra
    Sotiriou, Elena
    AUSTRALASIAN JOURNAL OF DERMATOLOGY, 2024, 65 (04) : 378 - 380
  • [28] Intuitive documentation of hidradenitis suppurativa site and severity in the clinic: steps towards the development of a patient-reported outcome measure
    Dubois, A.
    Meggitt, S.
    Hampton, P.
    BRITISH JOURNAL OF DERMATOLOGY, 2019, 181 : 50 - 50
  • [29] Description of a disease activity proforma for documentation of hidradenitis suppurativa severity and distribution, and suggestions for use as a patient-reported outcome measure
    Dubois, A.
    Meggitt, S.
    Hampton, P. J.
    CLINICAL AND EXPERIMENTAL DERMATOLOGY, 2020, 45 (05) : 598 - 599
  • [30] Biologics and Small Molecule Targeted Therapies for Pediatric Alopecia Areata, Psoriasis, Atopic Dermatitis, and Hidradenitis Suppurativa in the US: A Narrative Review
    Yi, Robin C.
    Moran, Shannon K.
    Gantz, Hannah Y.
    Strowd, Lindsay C.
    Feldman, Steven R.
    CHILDREN-BASEL, 2024, 11 (08):