iBDecide: A web-based tool to promote engagement in shared decision-making among adolescents with ulcerative colitis

被引：6

作者：

Daraiseh, N. M. ^{[1
,2
]}

Black, A. ^{[3
]}

Minar, P. ^{[1
,2
]}

Meisman, A. ^{[1
]}

Saxe, M. ^{[1
]}

Lipstein, E. A. ^{[1
,2
,4
]}

机构：

[1] Cincinnati Childrens Hosp Med Ctr, Cincinnati, OH USA

[2] Univ Cincinnati Coll Med, Dept Pediat, Cincinnati, OH USA

[3] Univ Cincinnati, Coll Design Architecture Art & Planning, Cincinnati, OH USA

[4] Cincinnati Childrens Hosp Med Ctr, T Bldg,240 Albert Sabin Way, Cincinnati, OH 45229 USA

来源：

PATIENT EDUCATION AND COUNSELING | 2022年 / 105卷 / 06期

关键词：

Shared decision-making; Adolescents; Ulcerative colitis; Design thinking; INFLAMMATORY-BOWEL-DISEASE; ADULTS; AIDS;

D O I：

10.1016/j.pec.2021.10.023

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

Background: Adolescents and young adults (AYAs) seek increased autonomy and self-efficacy. AYAs must learn to manage their medical care in preparation for transition to adult healthcare. Our team's research found that AYAs need more information about their disease and treatmentObjective: To develop and test the usability of a decision tool "iBDecide" to promote shared decision-making among AYAs with ulcerative colitis (UC) who are beginning to manage their treatment and medicationsMethods: Using design thinking, 14 AYAs, 6 healthcare providers, 4 designers, a social worker, and a human factors researcher developed a shared decision-making tool. The System Usability Scale (SUS) assessed usabilityResults: AYAs preferred an application with information on treatment, medication, nutrition, and symptom tracking. A web-based application, 'iBDecide', was developed to include these options. SUS results indicated that participants on average "agree" that: 'they would use iBDecide' and that 'it was easy to use and streamlined'. The mean SUS score was 78.25 (+/-12.91), range 70-90Discussion: Including AYAs in tool development helps ensure usability and improves engagement in shared decision-making. Co-designed tools may remove barriers for engagement and skill-building needed for the transition to adult care.Conclusion: iBDecide can stimulate AYA engagement in shared decision-making in treating UC.(c) 2021 Elsevier B.V. All rights reserved.

引用

页码：1628 / 1633

页数：6

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