Operationalizing the CARE and FAIR Principles for Indigenous data futures

被引：231

作者：

Carroll, Stephanie Russo ^{[1
,2
]}

Herczog, Edit ^{[3
]}

Hudson, Maui ^{[4
]}

Russell, Keith ^{[5
]}

Stall, Shelley ^{[6
]}

机构：

[1] Univ Arizona, Udall Ctr Studies Publ Policy, Native Nations Inst, Tucson, AZ 85721 USA

[2] Univ Arizona, Coll Publ Hlth, Tucson, AZ 85721 USA

[3] Vis & Values, Brussels, Belgium

[4] Univ Waikato, Te Kotahi Res Inst, Hamilton, New Zealand

[5] Australian Res Data Commons, Caulfield, Vic, Australia

[6] Amer Geophys Union, Data Leadership, Washington, DC USA

来源：

SCIENTIFIC DATA | 2021年 / 8卷 / 01期

关键词：

D O I：

10.1038/s41597-021-00892-0

中图分类号：

O [数理科学和化学]; P [天文学、地球科学]; Q [生物科学]; N [自然科学总论];

学科分类号：

07 ; 0710 ; 09 ;

摘要：

As big data, open data, and open science advance to increase access to complex and large datasets for innovation, discovery, and decision-making, Indigenous Peoples' rights to control and access their data within these data environments remain limited. Operationalizing the FAIR Principles for scientific data with the CARE Principles for Indigenous Data Governance enhances machine actionability and brings people and purpose to the fore to resolve Indigenous Peoples' rights to and interests in their data across the data lifecycle.

引用

页数：6

共 18 条

[1] Including Digital Sequence Data in the Nagoya Protocol Can Promote Data Sharing [J].

Ambler, Jon ;

Diallo, Alpha Ahmadou ;

Dearden, Peter K. ;

Wilcox, Phil ;

Hudson, Maui ;

Tiffin, Nicki .

TRENDS IN BIOTECHNOLOGY, 2021, 39 (02) :116-125

[2]

Anderson Jane., 2013, Museum Anthropology Review, V7, P105

[3]

Carroll SR., 2020, DATA SCI J, V19, P43, DOI [10.5334/dsj-2020-043, DOI 10.5334/DSJ-2020-043]

[4] Indigenous data governance: Strategies from united states native nations [J].

Carroll S.R. ;

Rodriguez-Lonebear D. ;

Martinez A. .

Data Science Journal, 2019, 18 (01)

[5]

Carroll Stephanie Russo, 2020, Working with the CARE principles: operationalising Indigenous data governance

[6]

First Nations Information Governance Centre, 2018, 1 NAT PRINC OCAP

[7]

Halperin J., 2019, CREATIVE COMMONS

[8] Three camps, one destination: the intersections of research data management, FAIR and Open [J].

Higman, Rosie ;

Bangert, Daniel ;

Jones, Sarah .

INSIGHTS-THE UKSG JOURNAL, 2019, 32

[9] Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data [J].

Hudson, Maui ;

Garrison, Nanibaa' A. ;

Sterling, Rogena ;

Caron, Nadine R. ;

Fox, Keolu ;

Yracheta, Joseph ;

Anderson, Jane ;

Wilcox, Phil ;

Arbour, Laura ;

Brown, Alex ;

Taualii, Maile ;

Kukutai, Tahu ;

Haring, Rodney ;

Te Aika, Ben ;

Baynam, Gareth S. ;

Dearden, Peter K. ;

Chagne, David ;

Malhi, Ripan S. ;

Garba, Ibrahim ;

Tiffin, Nicki ;

Bolnick, Deborah ;

Stott, Matthew ;

Rolleston, Anna K. ;

Ballantyne, Leah L. ;

Lovett, Ray ;

David-Chavez, Dominique ;

Martinez, Andrew ;

Sporle, Andrew ;

Walter, Maggie ;

Reading, Jeff ;

Carroll, Stephanie Russo .

NATURE REVIEWS GENETICS, 2020, 21 (06) :377-384

[10]

Kukutai T, 2016, RES MG CENT ABORIG E, V38, P1

← 1 2 →