Sibling Relationships Over the Life Course: Growing Up With a Disability

被引：24

作者：

Avieli, Hila ^{[1
]}

Band-Winterstein, Tova ^{[2
]}

Bergman, Tal Araten ^{[3
]}

机构：

[1] Ariel Univ, Ariel, Israel

[2] Univ Haifa, Dept Gerontol, Fac Social Welf & Hlth Sci, Haifa, Israel

[3] La Trobe Univ, Sch Allied Hlth Human Serv & Sport, Melbourne, Vic, Australia

来源：

QUALITATIVE HEALTH RESEARCH | 2019年 / 29卷 / 12期

基金：

以色列科学基金会;

关键词：

families; developmental disability; lived experience; health; qualitative; interpretive phenomenological analysis; Israel; DEVELOPMENTAL-DISABILITIES; CHRONIC ILLNESS; CEREBRAL-PALSY; ADULT CHILDREN; MENTAL-HEALTH; FAMILIES; PEOPLE; IMPACT; PERSPECTIVES; IMPAIRMENT;

D O I：

10.1177/1049732319837228

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

The research explores sibling relationships, and the ways in which they are shaped over the life course by family members, in families with a lifelong disability. In-depth, semistructured interviews were conducted with 15 family units including a parent, a sibling, and an adult sibling with a disability. The content analysis revealed five sibling relationship patterns: (a) "Not a child, but a parent caretaker"-the parent-surrogate sibling; (b) "We somehow grew apart"-the estranged sibling; (c) "It is important for me to maintain some kind of distance"-the bystander sibling; (d) "When there's something they want to tell him, they always send me"-the mediator sibling; and (e) "I love him to death"-the friend sibling. These patterns of adult sibling relationships are discussed in relation to family dynamics, values, and legacies; recommendations for practice and research are made.

引用

页码：1739 / 1750

页数：12

共 72 条

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