Rehabilitation in spinal muscular atrophy

被引:0
|
作者
Janska, A. [1 ]
机构
[1] 2 LF UK a FN Motol, Klin Detske Rehabil, V Uvalu 84-1, Prague 15006, Czech Republic
关键词
spinal muscular atrophy; rehabilitation; physical therapy; stretching; medical equipment; THERAPY;
D O I
10.48095/cccsnn20202S31
中图分类号
Q189 [神经科学];
学科分类号
071006 ;
摘要
Rehabilitation is the main part of a complex care in patients with spinal muscular atrophy. Early diagnosis is very important for the initiation of the next interventions. The text bellow contains a summary of recommendations for adequate rehabilitation care in child patients with this neuromuscular disease. Multidisciplinary care includes professionals such as pediatric neurologists, pediatric physiatrists, physiotherapists, occupational therapists, speech therapists, orthotics and advisors in adequate medical equipment considering the age of the patient and the stage of the disease. The goal of every intervention should be for the patients to be as sellsufficient as possible, including independent mobility, self-moving, pain relief and the ability to participate in school activities or work. In child patients there should be a therapeutic focus on the ability to play with other children or independent play.
引用
收藏
页码:S31 / S34
页数:4
相关论文
共 50 条
  • [21] Spinal muscular atrophy
    Iannaccone S.T.
    Smith S.A.
    Simard L.R.
    Current Neurology and Neuroscience Reports, 2004, 4 (1) : 74 - 80
  • [22] Spinal Muscular Atrophy
    Vitte, Jeremie
    Attali, Ruben
    Warwar, Nasim
    Gurt, Irena
    Melki, Judith
    INHERITED NEUROMUSCULAR DISEASES: TRANSLATION FROM PATHMECHANISMS TO THERAPIES, 2009, 652 : 237 - 246
  • [23] Spinal muscular atrophy
    Melki, J
    CURRENT OPINION IN NEUROLOGY, 1997, 10 (05) : 381 - 385
  • [24] Spinal muscular atrophy
    Isaacs, David
    JOURNAL OF PAEDIATRICS AND CHILD HEALTH, 2018, 54 (05) : 589 - 589
  • [25] Spinal muscular atrophy
    Talbot, K
    Davies, KE
    SEMINARS IN NEUROLOGY, 2001, 21 (02) : 189 - 197
  • [26] SPINAL MUSCULAR ATROPHY FUNCTIONAL COMPOSITE SCORE: A FUNCTIONAL MEASURE IN SPINAL MUSCULAR ATROPHY
    Montes, Jacqueline
    Glanzman, Allan M.
    Mazzone, Elena S.
    Martens, William B.
    Dunaway, Sally
    Pasternak, Amy
    Riley, Susan O.
    Quigley, Janet
    Pandya, Shree
    De Vivo, Darryl C.
    Kaufmann, Petra
    Chiriboga, Claudia A.
    Finkel, Richard S.
    Tennekoon, Gihan I.
    Darras, Basil T.
    Pane, Marika
    Mercuri, Eugenio
    Mcdermott, Michael P.
    MUSCLE & NERVE, 2015, 52 (06) : 942 - 947
  • [27] An Alternative Approach To Home-Based Rehabilitation Of Children With Spinal Muscular Atrophy
    Billeci, Lucia
    Tonacci, Alessandro
    Morales, Maria Aurora
    Astrea, Guja
    Battini, Roberta
    2022 IEEE INTERNATIONAL CONFERENCE ON PERVASIVE COMPUTING AND COMMUNICATIONS WORKSHOPS AND OTHER AFFILIATED EVENTS (PERCOM WORKSHOPS), 2022,
  • [28] SPINAL MUSCULAR-ATROPHY - EXPERIENCE IN DIAGNOSIS AND REHABILITATION MANAGEMENT OF 60 PATIENTS
    ENG, GD
    BINDER, H
    KOCH, B
    ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 1984, 65 (09): : 549 - 553
  • [29] Understanding spinal muscular atrophy
    不详
    Nature Structural Biology, 2001, 8 (1) : 1 - 1
  • [30] Neuroblastoma and Spinal Muscular Atrophy
    Blatt, Julie
    Gold, Stuart H.
    JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY, 2015, 37 (02) : 159 - 159