Complexity: An interpretative phenomenological analysis of the experiences of mothers of deaf children with cochlear implants and autism

被引:10
作者
Zaidman-Zait, Anat [1 ]
Curle, Deirdre [2 ]
机构
[1] Tel Aviv Univ, Tel Aviv, Israel
[2] Univ British Columbia, Vancouver, BC, Canada
关键词
autism spectrum disorder; cochlear implantation; interpretative phenomenological analysis; meaning; parenting; HEARING-LOSS; PARENTS; BENEFITS; OUTCOMES; DISABILITIES; EXPECTATIONS; CHALLENGES; DIAGNOSIS; SERVICE; STRESS;
D O I
10.1177/1359105316646171
中图分类号
B849 [应用心理学];
学科分类号
040203 ;
摘要
The purpose of this study was to explore the experiences of parenting a child with a dual diagnosis of childhood deafness and autism spectrum disorder who underwent cochlear implantation. Experiences of these parents are rarely discussed within the literature. Interpretive Phenomenological Analysis was used to examine nine mothers of boys (4-9years old) for understanding their parenting experiences. Three superordinate themes were identified: complexity, personal and family sacrifices and parent-professional partnerships. These themes provide a rich account of mothers' interpretations of their experiences, and reflect the numerous challenges they face. This study helps expand the literature on cochlear implantation for children with autism spectrum disorder, and discusses implications for clinical and educational practice.
引用
收藏
页码:1173 / 1184
页数:12
相关论文
共 41 条
  • [1] [Anonymous], 2020, About DSM-5
  • [2] APA A.P. A., 2000, Diagnostic and statistical manual of mental disorders: DSM-IV, V4th
  • [3] Cochlear implantation in deaf children with associated disabilities: Challenges and outcomes
    Berrettini, Stefano
    Forli, Francesca
    Genovese, Elisabetta
    Santarelli, Rosamaria
    Arslan, Edoardo
    Chilosi, Anna Maria
    Cipriani, Paola
    [J]. INTERNATIONAL JOURNAL OF AUDIOLOGY, 2008, 47 (04) : 199 - 208
  • [4] The Positives of Caregiving: Mothers' Experiences Caregiving for a Child With Autism
    Corman, Michael K.
    [J]. FAMILIES IN SOCIETY-THE JOURNAL OF CONTEMPORARY SOCIAL SERVICES, 2009, 90 (04): : 439 - 445
  • [5] Crnic K., 2002, HDB PARENTING, V5, P243
  • [6] Decker KB, 2012, AM ANN DEAF, V157, P326
  • [7] Sound beginnings - Supporting families of young deaf children with cochlear implants
    DesJardin, Jean L.
    Eisenberg, Laurie S.
    Hodapp, Robert M.
    [J]. INFANTS & YOUNG CHILDREN, 2006, 19 (03) : 179 - 189
  • [8] Developmental delay and outcomes in paediatric cochlear implantation: Implications for candidacy
    Edwards, Lindsey C.
    Frost, Ruth
    Witham, Fiona
    [J]. INTERNATIONAL JOURNAL OF PEDIATRIC OTORHINOLARYNGOLOGY, 2006, 70 (09) : 1593 - 1600
  • [9] Finlay L, 2011, PHENOMENOLOGY FOR THERAPISTS: RESEARCHING THE LIVED WORLD, P139
  • [10] The hero's story and autism - Grounded theory study of websites for parents of children with autism
    Fleischmann, A
    [J]. AUTISM, 2005, 9 (03) : 299 - 316