Illness Perception and Well-Being Among Persons with Multiple Sclerosis and Their Caregivers

被引:44
作者
Bassi, Marta [1 ]
Falautano, Monica [2 ]
Cilia, Sabina [3 ]
Goretti, Benedetta [4 ]
Grobberio, Monica [5 ]
Pattini, Marianna [6 ]
Pietrolongo, Erika [7 ]
Viterbo, Rosa Gemma [8 ]
Amato, Maria Pia [4 ]
Benin, Miriam [5 ]
Lugaresi, Alessandra [7 ]
Minacapelli, Eleonora [2 ]
Montanari, Enrico [6 ]
Patti, Francesco
Trojano, Maria [8 ]
Delle Fave, Antonella [9 ]
机构
[1] Univ Milan, Dept Biomed & Clin Sci L Sacco, Via GB Grassi 74, I-20157 Milan, Italy
[2] Hosp San Raffaele, Dept Neurol, I-20132 Milan, Italy
[3] Univ Polyclin Hosp G Rodol, Multiple Sclerosis Ctr, Catania, Italy
[4] Univ Florence, Sect Neurosci, Dept NEUROFARBA, Florence, Italy
[5] St Anna Hosp, Dept Neurol, Como, Italy
[6] Hosp Vaio Fidenza, UOC Neurol Unit, Multiple Sclerosis Ctr, Fidenza, Italy
[7] Univ G dAnnunzio, Dept Neurosci Imaging & Clin Sci, Chieti, Italy
[8] Univ Bari, Dept Basic Med Sci Neurosci & Sense Organs, Bari, Italy
[9] Univ Milan, Milan, Italy
关键词
Multiple sclerosis; Illness perceptions; Psychological well-being; Satisfaction with life; Hedonic balance; QUALITY-OF-LIFE; QUESTIONNAIRE IPQ-R; HEALTH-PROFESSIONALS; SPOUSE PERCEPTIONS; SIGNIFICANT OTHERS; NEGATIVE AFFECT; BREAST-CANCER; REPRESENTATIONS; PATIENT; ASSOCIATIONS;
D O I
10.1007/s10880-015-9425-8
中图分类号
B849 [应用心理学];
学科分类号
040203 ;
摘要
This study jointly examined illness beliefs held by persons with multiple sclerosis (PwMS) and caregivers in relation to well-being. A group of 68 PwMS and their caregivers completed the Revised Illness Perception Questionnaire, Psychological Well-being Scales, Satisfaction with Life Scale and Positive Affect and Negative Affect Schedule. Findings revealed that PwMS' well-being was primarily predicted by their own illness beliefs, and that also caregivers' well-being was primarily predicted by their own beliefs. Across the two groups, well-being was positively associated with their belief that they understood the disease, and inversely associated with their representations of negative emotions. In addition, among PwMS, well-being was inversely associated with the number of symptoms they specifically attributed to their illness, while among caregivers, well-being was positively associated with beliefs that treatment could control the disease. Based on the study findings, psychoeducational and cognitive-behavioral strategies are suggested to promote well-being among PwMS and caregivers.
引用
收藏
页码:33 / 52
页数:20
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