The Pink Underside: The Commercialization of Medical Risk Assessment and Decision-Making Tools for Hereditary Breast Cancer Risk

被引:3
作者
Hesse-Biber, Sharlene [1 ]
Flynn, Bailey [2 ]
Farrelly, Keeva [2 ]
机构
[1] Boston Coll, Womens Studies Program, Chestnut Hill, MA 02167 USA
[2] Boston Coll, BRCA Project, Chestnut Hill, MA 02167 USA
关键词
communication; decision making; genetic disorders; health-seeking marketing; consumerism; methodology; qualitative; template analysis; United States; BRCA-RELATED CANCER; FAMILY COMMUNICATION; WOMEN; HEALTH; US;
D O I
10.1177/1049732318767395
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
The growth of the Internet since the millennium has opened up a myriad of opportunities for education, particularly in medicine. Although those looking for health care information used to have to turn to a face-to-face doctor's visit, an immense library of medical advice is now available at their fingertips. The BRCA genetic predispositions (mutations of the BRCA1 and BRCA2 breast cancer genes) which expose men and women to greater risk of breast, ovarian, and other cancers can be researched extensively online. Several nonprofit organizations now offer online risk assessment and decision-making tools meant to supplement conversation with medical professionals, which in actuality are quickly replacing it. We argue here through a critical qualitative template analysis of several such tools that the discursive frameworks utilized are prone to fearmongering, commercialization, and questionable validity. Left unchecked, these assessment tools could do more harm than good in driving young women especially to take unnecessary extreme surgical action.
引用
收藏
页码:1523 / 1538
页数:16
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