Conducting end-of-life studies in pediatric oncology

被引：58

作者：

Hinds, Pamela S. ^{[1
]}

Burghen, Elizabeth A. ^{[1
]}

Pritchard, Michele ^{[1
]}

机构：

[1] St Jude Childrens Hosp, Div Nursing Res, Memphis, TN 38105 USA

来源：

WESTERN JOURNAL OF NURSING RESEARCH | 2007年 / 29卷 / 04期

关键词：

pediatrics; pediatric oncology; end-of-life research; dying children and adolescents; PALLIATIVE CARE RESEARCH; CLINICAL-RESEARCH; CANCER; CHILDREN; CHALLENGES; ADOLESCENTS; GUIDELINES; PARENTS; ISSUES; TRIAL;

D O I：

10.1177/0193945906295533

中图分类号：

R47 [护理学];

学科分类号：

1011 ;

摘要：

Improving our ability to prevent or diminish suffering in dying children and adolescents and their families is dependent on the completion of high-quality pediatric end-of-life studies. The purpose of this article is to provide useful evidence-based strategies that have been used to implement and complete clinically useful pediatric end-of-life studies in oncology. The article describes specific peer-review and methodological challenges and links those to evidence-based solutions. The challenges and solutions described in this article are from eight end-of-life studies involving pediatric oncology patients. It is hoped that the solutions described here will benefit others in their efforts to implement pediatric end-of-life studies so that clinically useful findings will result and will improve the care of dying children and adolescents.

引用

页码：448 / 465

页数：18