Kidney transplant patients' attitudes towards self-management support: A Q-methodological study

被引：23
作者：
Grijpma, J. W. [1 ]
Tielen, M. [1 ]
van Staa, A. L. [2 ,3 ]
Maasdam, L. [1 ]
van Gelder, T. [1 ]
Berger, S. P. [1 ]
Busschbach, J. J. [4 ]
Betjes, M. G. H. [1 ]
Weimar, W. [1 ]
Massey, E. K. [1 ]
机构：
[1] Erasmus MC, Dept Internal Med, POB 2040, NL-3000 CA Rotterdam, Netherlands
[2] Rotterdam Univ Appl Sci, Res Ctr Innovat Care, POB 25035, NL-3001 HA Rotterdam, Netherlands
[3] Erasmus Univ, Inst Hlth Policy & Management IBMG, Rotterdam, Netherlands
[4] Erasmus MC, Dept Psychiat, POB 2040, NL-3000 CA Rotterdam, Netherlands
来源：
PATIENT EDUCATION AND COUNSELING | 2016年 / 99卷 / 05期
关键词：
Self-care; Self-management support; Q-methodology; Kidney transplantation; QUALITY-OF-LIFE; MEDICATION-ADHERENCE; NONADHERENCE; PERSPECTIVES; PREFERENCES; ACTIVATION; NURSES; PEOPLE; RISK;
D O I：
10.1016/j.pec.2015.11.018
中图分类号：
R1 [预防医学、卫生学];
学科分类号：
1004 ; 120402 ;
摘要：
Objective: Kidney transplant recipients face many self-management challenges. We aimed to identify profiles of attitudes towards self-management support (SMS) shortly after kidney transplantation. Methods: Profiles were generated using Q-methodology: In face-to-face interviews participants rank-ordered opinion statements on aspects of SMS according to agreement. Socio-demographic and medical characteristics were assessed using a questionnaire. By-person factor analysis was used to analyze the rankings and qualitative data was used to support choice of profiles. The resulting factors represent clusters of patients with similar attitudes towards SMS. Results: Forty-three patients (mean age = 56; 77% male) participated. Four profiles were identified: (A) transplant-focused and obedient; (B) holistic and collaborative; (C) life-focused and self-determined; and (D) was bipolar. The positive pole (D+) minimalizing and disengaged and the negative pole (D-) coping-focused and needy represent opposing viewpoints within the same profile. Socio-demographic and medical characteristics were not related to profile membership. Discussion: Each profile represents a specific attitude on post-transplant life, responsibility for health and decision-making, SMS needs, and preferences for SMS. Practical implications: Patients vary in their attitude, needs and preferences for SMS indicating the necessity of providing personalized support after kidney transplantation. Health professionals should explore patients' SMS needs and adapt support accordingly. (C) 2015 Elsevier Ireland Ltd. All rights reserved.
引用
收藏
页码：836 / 843
页数：8
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