Moving on: Transition experiences of young adults with chronic pain

被引:25
作者
Higginson, Andrea [1 ]
Forgeron, Paula [1 ,2 ]
Harrison, Denise [1 ,3 ]
Finley, G. Allen [4 ,5 ]
Dick, Bruce D. [6 ,7 ,8 ,9 ,10 ,11 ]
机构
[1] Univ Ottawa, Fac Hlth Sci, Sch Nursing, Ottawa, ON, Canada
[2] Dalhousie Univ, Dept Anaesthesia, Halifax, NS, Canada
[3] Childrens Hosp Eastern Ontario, Ottawa, ON, Canada
[4] Dalhousie Univ, Dept Anesthesia & Psychol, Halifax, NS, Canada
[5] IWK Hlth Ctr, Ctr Pediat Pain Res, Halifax, NS, Canada
[6] Univ Alberta, Fac Med & Dent, Dept Anesthesiol & Pain Med, Edmonton, AB, Canada
[7] Univ Alberta, Fac Med & Dent, Dept Psychiat, Edmonton, AB, Canada
[8] Univ Alberta, Fac Med & Dent, Dept Pediat, Edmonton, AB, Canada
[9] Univ Alberta, Dept Anesthesiol & Pain Med, Fac Rehabil Med, Edmonton, AB, Canada
[10] Univ Alberta, Dept Psychiat, Fac Rehabil Med, Edmonton, AB, Canada
[11] Univ Alberta, Dept Pediat, Fac Rehabil Med, Edmonton, AB, Canada
来源
CANADIAN JOURNAL OF PAIN-REVUE CANADIENNE DE LA DOULEUR | 2019年 / 3卷 / 01期
关键词
transition; chronic pain; young adults; adolescents; young people; QUALITATIVE CONTENT-ANALYSIS; FUNCTIONAL ABDOMINAL-PAIN; HEALTH-CARE TRANSITION; CHRONIC ILLNESS; ADOLESCENTS; PARENTS; PEOPLE; CHILDREN; PERCEPTIONS; DISEASE;
D O I
10.1080/24740527.2019.1587707
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Purpose The purpose of this study was to explore the transition experience of young adults with chronic pain in Canada from the pediatric health care setting to the adult health care setting. Materials and Methods A qualitative descriptive approach using semistructured interviews was used to capture the transition experiences of young people with chronic pain who have recently transferred from the pediatric setting to the adult health care setting. Participants were recruited from west, central, and the east coast of Canada to situate the findings within the context of Canada. Interviews were transcribed and analyzed using qualitative inductive content analysis. Results Nine participants were interviewed, three from each part of Canada (west, central, and east). Five common categories were determined to describe the transition experience of young adults with chronic pain which include (1) independence (I can do it, maybe?), (2) pain trajectory (stress and pain along for the ride), (3) social support networks (need a shoulder to lean on), (4) parental support (obviously they are there), and (5) collaborative systems (the bridge). Conclusion Young people with chronic pain experience unique challenges when faced with transitioning to the adult health care setting. Supporting the young person and his or her family in preparation and readiness and collaboration between the pediatric and adult health care settings are essential to ensure a smooth transition and avoid negative transition outcomes. Further research is needed to determine the best ways to prepare young people for transition and the care activities required in both pediatric and adult health care settings to improve pain-related outcomes posttransition. RESUME But: Etudier l'experience de transition des jeunes adultes souffrant de douleur chronique au Canada d'un etablissement de soins pediatriques a un etablissement de soins pour adultes. Materiel et methodes: Une approche descriptive qualitative ayant recours a des entrevues semi-structurees pour recueillir les experiences de transition de jeunes souffrant de douleur chronique qui ont recemment ete transferes d'un etablissement de soins pediatriquse a un etablissement de soins pour adultes. Les participants ont ete recrutes sur la cote Est, dans l'Ouest et au centre du Canada pour que les resultats puissent etre situes dans le contexte du Canada. Les entrevues ont ete transcrites et analysees a l'aide d'une analyse de contenu inductive qualitative. Resultats: Neuf participants ont ete interviewes, soit trois de chaque partie du Canada (ouest, centre et est). Cinq categories communes ont ete definies pour decrire l'experience de transition des jeunes adultes souffrant de douleur chronique, soit i) l'independance; je suis capable, peut-etre? ii) la trajectoire de la douleur: stress et douleur tout au long du parcours iii) les reseaux de soutien social; le besoin d'une epaule sur laquelle s'appuyer iv) le soutien parental; de toute evidence, ils sont presents et v) les systemes de collaboration; le pont. Conclusion: Les jeunes souffrant de douleur chronique font face a des defis particuliers lorsqu'ils doivent faire la transition vers des etablissements de soins de sante pour adultes. Il est essential de soutenir les jeunes et leur famille ainsi que d'etablir une collaboration entre l'etablissement pediatrique et l'etablissement pour adultes, afin que la transition se fasse en douceur et eviter que la transition entraine des effets negatifs. D'autres etudes sont necessaires pour determiner les meilleures facons de preparer les jeunes a la transition et les soins necessaires dans les deux milieux, pediatrique et pour adultes, afin d'obtenir de meilleurs resultats en ce qui concerne la douleur post-transition.
引用
收藏
页码:85 / 97
页数:13
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