Improving diabetes care for people with intellectual disabilities: a qualitative study exploring the perceptions and experiences of professionals in diabetes and intellectual disability services

被引：26

作者：

Brown, M. ^{[1
,2
]}

Taggart, L. ^{[4
]}

Karatzias, T. ^{[1
,3
]}

Truesdale, M. ^{[1
]}

Walley, R. ^{[1
]}

Northway, R. ^{[5
]}

Macrae, S. ^{[1
]}

Carey, M. ^{[6
]}

Davies, M. ^{[6
,7
]}

机构：

[1] Edinburgh Napier Univ, Sch Hlth & Social Care, Dept Nursing & Midwifery, Edinburgh, Midlothian, Scotland

[2] NHS Lothian, Specialist Learning Disabil Serv, Dept Clin Psychol, Edinburgh, Midlothian, Scotland

[3] NHS Lothian, Rivers Ctr Traumat Stress, Dept Clin Psychol, Edinburgh, Midlothian, Scotland

[4] Univ Ulster, Inst Nursing & Hlth Res, Dept Nursing, Coleraine, Londonderry, North Ireland

[5] Univ South Wales, Fac Life Sci & Educ, Dept Nursing & Midwifery, Pontypridd, M Glam, Wales

[6] Univ Hosp Leicester, Dept Hlth Sci, Leicester Diabet Ctr, Leicester, Leics, England

[7] Univ Leicester, Dept Hlth Sci, Diabet Res Ctr, Leicester, Leics, England

来源：

JOURNAL OF INTELLECTUAL DISABILITY RESEARCH | 2017年 / 61卷 / 05期

关键词：

diabetes; intellectual disability; learning disability; practitioner experiences; qualitative research; service provision; DIAGNOSED DESMOND PROGRAM; SELF-MANAGEMENT; HEALTH DISPARITIES; ADULTS; EDUCATION; POPULATION; PREVALENCE; IMPACT; INDIVIDUALS; MORBIDITY;

D O I：

10.1111/jir.12369

中图分类号：

G76 [特殊教育];

学科分类号：

040109 ;

摘要：

Background Globally, diabetes is increasing with concerns about the impact on outcomes, including premature death and the costs associated with managing the condition. Research indicates that adults with intellectual disabilities (ID) are two to three times more likely to develop diabetes; however, there has been limited focus on diabetes service utilisation in this population. The aim of this study is to explore the perceptions and experiences of diabetes and ID practitioners. Methods A series of 1:1 semi-structured interviews were undertaken in one Scottish health service area. In total, 29 qualitative interviews were conducted: 10 with diabetes practitioners from primary and secondary care, 14 from ID services and 5 from community care services regarding diabetes service provision for this population. Thematic content analysis was undertaken to identify the themes and subthemes. Results Three main themes were identified: (1) enabling access to services to meet diabetes-related care needs of people with ID; (2) communication and service improvements between staff, patients and across services; and (3) providing person-centred diabetes care and developing adapted resources to increase patient self-care. Conclusions The findings of this study have important international implications in how diabetes practitioners plan and deliver services for people with ID and other vulnerable groups with limited cognitive ability and communication skills and difficulties in self-management. The findings highlight that access to diabetes education and adapted resources is needed, and if reasonable adjustments' are made to service provision and practice, people with ID can benefit from improved healthcare. Developing joint clinics to share knowledge and resources between diabetes and ID practitioners may improve service delivery and continuity of care, and thereby diminish the costs of not providing quality care.

引用

页码：435 / 449

页数：15

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