Information demands from families of children with Autism Spectrum Disorder

被引：2

作者：

Weissheimer, Gisele ^{[1
]}

Mazza, Veronica de Azevedo ^{[1
]}

Santana, Julia Mazul ^{[1
]}

Nobrega Martins Ruthes, Victoria Beatriz Trevisan ^{[1
]}

Siqueira Lima Freitas, Cibelly Aliny ^{[2
]}

机构：

[1] Univ Fed Parana, Curitiba, Parana, Brazil

[2] Univ Estadual Vale Acarau, Sobral, Ceara, Brazil

来源：

REVISTA BRASILEIRA DE ENFERMAGEM | 2021年 / 74卷 / 05期

关键词：

Autism Spectrum Disorder; Information; Family; Child; Social Support; DECISION-MAKING; LONG-TERM; PARENTS; EXPERIENCES; METAANALYSIS; NEEDS;

D O I：

10.1590/0034-7167-2020-0642

中图分类号：

R47 [护理学];

学科分类号：

1011 ;

摘要：

Objective: to identify the information demands of families of children with Autism Spectrum Disorder. Method: this is a qualitative study conducted through semi-structured and audio-recorded interviews with 55 family members, in the states of Parana, Ceara, and Macapa, between September 2018 and September 2019. Thematic category analysis and Qualitative Data Analysis Software resources were used for data organization. Results: it was identified that families need information regarding the characteristics of Autism Spectrum Disorder (definition, cause, possibility of cure, prognosis and the probability of having another child with Autism Spectrum Disorder); child's routine and behavior; future rights and expectations. Final considerations: information demands are relevant to support professionals, health managers and other services in health care organization to support families of children with autism.

引用

页数：8

共 50 条

[1] Examining Postgraduate Thesis Held with Families of Children with Autism Spectrum Disorder in Turkey
Ozcelik, Mahide
Baglama, Basak
REVISTA ROMANEASCA PENTRU EDUCATIE MULTIDIMENSIONALA, 2021, 13 (01): : 1 - 19
[2] Quality of Life in Families of Young Children With Autism Spectrum Disorder
Mello, Catherine
Rivard, Melina
Terroux, Amelie
Mercier, Celine
AJIDD-AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, 2019, 124 (06): : 535 - 548
[3] Support Needs of Families Living with Children with Autism Spectrum Disorder
Searing, Billie Margaret Jean
Graham, Fiona
Grainger, Rebecca
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2015, 45 (11) : 3693 - 3702
[4] Social Support and Family Functioning in Chinese Families of Children with Autism Spectrum Disorder
Lei, Xianmei
Kantor, Jiri
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2021, 18 (07)
[5] Factors Associated with Resilience in Families of Children with Autism Spectrum Disorder
Al-Jadiri, Aseel
Tybor, David J.
Mule, Christina
Sakai, Christina
JOURNAL OF DEVELOPMENTAL AND BEHAVIORAL PEDIATRICS, 2021, 42 (01) : 16 - 22
[6] Caregiving Experiences of Latino Families With Children With Autism Spectrum Disorder
Blanche, Erna Imperatore
Diaz, Jesus
Barretto, Tanya
Cermak, Sharon A.
AMERICAN JOURNAL OF OCCUPATIONAL THERAPY, 2015, 69 (05) : p1 - 11
[7] Support Needs of Families Living with Children with Autism Spectrum Disorder
Billie Margaret Jean Searing
Fiona Graham
Rebecca Grainger
Journal of Autism and Developmental Disorders, 2015, 45 : 3693 - 3702
[8] Understanding the Needs of Families of Children Who Are Deaf/Hard of Hearing with an Autism Spectrum Disorder
Wiley, Susan
Meinzen-Derr, Jareen
Hunter, Lisa
Hudock, Rebekah
Murphy, Dora
Bentley, Katie
Williams, Tanishia
JOURNAL OF THE AMERICAN ACADEMY OF AUDIOLOGY, 2018, 29 (05) : 378 - 388
[9] Coping resources and stress due to demands in parents to children with autism spectrum disorder
Sartor, Teresa
Sons, Sarah
Kuhn, Jorg-Tobias
Troester, Heinrich
FRONTIERS IN REHABILITATION SCIENCES, 2023, 4
[10] Strategy of orientation to families of children with Autism Spectrum Disorder
Leyva-Arevalo, Doralis
Olbine-Yais, Saula Felicia
Leticia Pena-Hernandez, Nerina
LUZ, 2019, 18 (03): : 70 - 79

← 1 2 3 4 5 →