What defines a pulmonary exacerbation? The perceptions of adults with cystic fibrosis

被引：32

作者：

Abbott, J. ^{[1
]}

Holt, A. ^{[1
]}

Hart, A. ^{[1
]}

Morton, A. M. ^{[3
]}

MacDougall, L. ^{[2
]}

Pogson, M. ^{[2
]}

Milne, G. ^{[2
]}

Rodgers, H. C. ^{[2
]}

Conway, S. P. ^{[3
]}

机构：

[1] Univ Cent Lancashire, Fac Hlth, Preston PR1 2HE, Lancs, England

[2] Ninewells Hosp, Adult Cyst Fibrosis Unit, Dundee DD1 9SY, Scotland

[3] St James Hosp, Adult Cyst Fibrosis Unit, Leeds LS9 7TF, W Yorkshire, England

来源：

JOURNAL OF CYSTIC FIBROSIS | 2009年 / 8卷 / 05期

关键词：

Pulmonary exacerbation; Respiratory symptoms; Patient-reported outcome; Qualitative data;

D O I：

10.1016/j.jcf.2009.07.003

中图分类号：

R56 [呼吸系及胸部疾病];

学科分类号：

摘要：

Background: There is no standardised definition of a pulmonary exacerbation in cystic fibrosis (CF). In attempting to achieve standardised criteria it is important to identify patient-reported indicators. Methods: Interviews were undertaken with 47 adults with CF. Participants were asked to report symptoms experienced during a pulmonary exacerbation in two ways: the first symptoms they become aware of, and how they subsequently recognised when they were improving. Results: A range of systemic and respiratory symptoms were reported. Their relative importance varied by severity of disease. The severity and subsequent improvement of an exacerbation was often described as limitations on their activities. Conclusion: These preliminary data suggest that patient-reported indicators of a pulmonary exacerbation may not be the same for all adults with CF. Whether different indicators are associated with specific demographic or clinical variables remains to be evaluated. (C) 2009 European Cystic Fibrosis Society. Published by Elsevier B.V. All rights reserved.

引用

页码：356 / 359

页数：4

共 16 条

[1] Can Health-related Quality of Life Predict Survival in Adults with Cystic Fibrosis? [J].