Collaborating and Sharing Data in Epilepsy Research

被引:59
作者
Wagenaar, Joost B. [1 ]
Worrell, Gregory A. [2 ]
Ives, Zachary [3 ]
Matthias, Duempelmann
Litt, Brian [1 ,5 ]
Schulze-Bonhage, Andreas [4 ]
机构
[1] Univ Penn, Dept Neurol, 301 Hayden Hall,3320 Smith Walk, Philadelphia, PA 19104 USA
[2] Mayo Clin, Mayo Syst Elect Lab, Dept Neurol, Rochester, MN USA
[3] Univ Penn, Dept Comp & Informat Sci, Philadelphia, PA 19104 USA
[4] Univ Hosp Freiburg, Dept Epileptol, Freiburg, Germany
[5] Univ Penn, Dept Bioengn, Philadelphia, PA 19104 USA
关键词
Epilepsy; Data sharing; Cloud computing; Data Repositories; EEG; SEIZURE PREDICTION; LONG-TERM; EEG; WORKSHOP;
D O I
10.1097/WNP.0000000000000159
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Technological advances are dramatically advancing translational research in Epilepsy. Neurophysiology, imaging, and metadata are now recorded digitally in most centers, enabling quantitative analysis. Basic and translational research opportunities to use these data are exploding, but academic and funding cultures prevent this potential from being realized. Research on epileptogenic networks, antiepileptic devices, and biomarkers could progress rapidly if collaborative efforts to digest this "big neuro data" could be organized. Higher temporal and spatial resolution data are driving the need for novel multidimensional visualization and analysis tools. Crowd-sourced science, the same that drives innovation in computer science, could easily be mobilized for these tasks, were it not for competition for funding, attribution, and lack of standard data formats and platforms. As these efforts mature, there is a great opportunity to advance Epilepsy research through data sharing and increase collaboration between the international research community.
引用
收藏
页码:235 / 239
页数:5
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