The importance of a collaborative health-related quality of life measurement strategy for adolescents and young adults with cancer

被引：9
作者：
Husson, Olga [1 ,2 ,3 ]
Sodergren, Samantha C. [4 ]
Darlington, Anne-Sophie [4 ]
机构：
[1] Netherlands Canc Inst, Dept Med Oncol, Amsterdam, Netherlands
[2] Netherlands Canc Inst, Div Psychosocial Res & Epidemiol, Amsterdam, Netherlands
[3] Inst Canc Res, Div Clin Studies, London, England
[4] Univ Southampton, Fac Environm & Life Sci, Sch Hlth Sci, Southampton, Hants, England
来源：
CANCER | 2021年 / 127卷 / 10期
关键词：
PATIENT-REPORTED OUTCOMES; EORTC QLQ-C30;
D O I：
10.1002/cncr.33416
中图分类号：
R73 [肿瘤学];
学科分类号：
100214 ;
摘要：
引用
收藏
页码：1712 / 1713
页数：2
相关论文
共 13 条
[1]   The Patient-Reported Outcomes Measurement Information System (PROMIS) Progress of an NIH roadmap cooperative group during its first two years [J].
Cella, David ;
Yount, Susan ;
Rothrock, Nan ;
Gershon, Richard ;
Cook, Karon ;
Reeve, Bryce ;
Ader, Deborah ;
Fries, James F. ;
Bruce, Bonnie ;
Rose, Mattias .
MEDICAL CARE, 2007, 45 (05) :S3-S11
[2]   Overview of Adolescent and Young Adult Oncology [J].
Coccia, Peter F. .
JOURNAL OF ONCOLOGY PRACTICE, 2019, 15 (05) :235-+
[3]   Focusing on Core Patient-Reported Outcomes in Cancer Clinical Trials-Letter [J].
Groenvold, Mogens ;
Aaronson, Neil K. ;
Darlington, Anne-Sophie E. ;
Fitzsimmons, Deborah ;
Greimel, Eva ;
Holzner, Bernhard ;
Reijneveld, Jaap C. ;
Tomaszewski, Krzysztof A. ;
Verdonck-de Leeuw, Irma ;
van de Poll-Franse, Lonneke .
CLINICAL CANCER RESEARCH, 2016, 22 (22) :5617-5617
[4]   Minimal clinically meaningful differences for the EORTC QLQ-C30 and EORTC QLQ-BN20 scales in brain cancer patients [J].
Maringwa, J. ;
Quinten, C. ;
King, M. ;
Ringash, J. ;
Osoba, D. ;
Coens, C. ;
Martinelli, F. ;
Reeve, B. B. ;
Gotay, C. ;
Greimel, E. ;
Flechtner, H. ;
Cleeland, C. S. ;
Schmucker-Von Koch, J. ;
Weis, J. ;
Van Den Bent, M. J. ;
Stupp, R. ;
Taphoorn, M. J. ;
Bottomley, A. .
ANNALS OF ONCOLOGY, 2011, 22 (09) :2107-2112
[5]   General population normative data for the EORTC QLQ-C30 health-related quality of life questionnaire based on 15,386 persons across 13 European countries, Canada and the Unites States [J].
Nolte, S. ;
Liegl, G. ;
Petersen, M. A. ;
Aaronson, N. K. ;
Costantini, A. ;
Fayers, P. M. ;
Groenvold, M. ;
Holzner, B. ;
Johnson, C. D. ;
Kemmler, G. ;
Tomaszewski, K. A. ;
Waldmann, A. ;
Young, T. E. ;
Rose, M. .
EUROPEAN JOURNAL OF CANCER, 2019, 107 :153-163
[6]   The EORTC CAT Core-The computer adaptive version of the EORTC QLQ-C30 questionnaire [J].
Petersen, Morten Aa ;
Aaronson, Neil K. ;
Arraras, Juan, I ;
Chie, Wei-Chu ;
Conroy, Thierry ;
Costantini, Anna ;
Dirven, Linda ;
Fayers, Peter ;
Gamper, Eva-Maria ;
Giesinger, Johannes M. ;
Habets, Esther J. J. ;
Hammerlid, Eva ;
Helbostad, Jorunn ;
Hjermstad, Marianne J. ;
Holzner, Bernhard ;
Johnson, Colin ;
Kemmler, Georg ;
King, Madeleine T. ;
Kaasa, Stein ;
Loge, Jon H. ;
Reijneveld, Jaap C. ;
Singer, Susanne ;
Taphoorn, Martin J. B. ;
Thamsborg, Lise H. ;
Tomaszewski, Krzysztof A. ;
Velikova, Galina ;
Verdonck-de Leeuw, Irma M. ;
Young, Teresa ;
Groenvold, Mogens .
EUROPEAN JOURNAL OF CANCER, 2018, 100 :8-16
[7]   Standardizing Patient Outcomes Measurement [J].
Porter, Michael E. ;
Larsson, Stefan ;
Lee, Thomas H. .
NEW ENGLAND JOURNAL OF MEDICINE, 2016, 374 (06) :504-506
[8]   Core outcome sets in cancer and their approaches to identifying and selecting patient-reported outcome measures: a systematic review [J].
Ramsey, Imogen ;
Eckert, Marion ;
Hutchinson, Amanda D. ;
Marker, Julie ;
Corsini, Nadia .
JOURNAL OF PATIENT-REPORTED OUTCOMES, 2020, 4 (01)
[9]   Optimizing the measurement of health-related quality of life in adolescents and young adults with cancer [J].
Salsman, John M. ;
Danhauer, Suzanne C. ;
Moore, Justin B. ;
Canzona, Mollie R. ;
Victorson, David E. ;
Zebrack, Bradley J. ;
Reeve, Bryce B. .
CANCER, 2020, 126 (22) :4818-4824
[10]   Item banking and computer-adaptive testing in clinical trials: Standing in sight of the PROMISed land [J].
Smith, Adam B. ;
Hanbury, Andria ;
Retzler, Jenny .
CONTEMPORARY CLINICAL TRIALS COMMUNICATIONS, 2019, 13
12