The infantilized researcher and research subject: ethics, consent and risk

被引:27
作者
Connor, James [1 ]
Copland, Simon [1 ]
Owen, Jill [1 ]
机构
[1] UNSW ADFA, Sch Business, Northcot Dr, Canberra, ACT 2610, Australia
基金
英国医学研究理事会; 澳大利亚研究理事会; 加拿大自然科学与工程研究理事会; 加拿大健康研究院;
关键词
confidentiality; consent; ethics; harm; qualitative research; RESEARCH PARTICIPANTS; QUALITATIVE RESEARCH; CONFIDENTIALITY; PERSPECTIVES; MANAGEMENT; COMMITTEES; ISSUES;
D O I
10.1177/1468794117730686
中图分类号
C [社会科学总论];
学科分类号
03 ; 0303 ;
摘要
Current research ethics processes, based on the mantra of privacy and institutional protection, take a paternalistic approach to research participants that leaves them open to harm. Reflecting on our own research/consultancy as a case study to illustrate the current flaws, we explore our and our subjects' experiences within the wider political context of institutional ethical rules and the Australian NHMRC guidelines. In doing so we argue for fundamental changes to the modern research ethics processes - a system that treats participants more as research collaborators rather than victims in waiting. A complete review of ethics processes is needed to empower participants and researchers to recognize the reality of the process as co-created and negotiated. This includes changes at the top level of research administration - a shift in ethics policies and procedures as well as greater education in ethics with commensurate trust for active researchers.
引用
收藏
页码:400 / 415
页数:16
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