Reconsidering Dynamic Consent in Biobanking Ethical and Political Consequences of Transforming Research Participants into ICT Users

被引：4

作者：

Soulier, Alexandra ^{[1
]}

机构：

[1] Uppsala Univ, Ctr Res Eth & Bioeth CRB, SIENNA Project, Uppsala, Sweden

来源：

IEEE TECHNOLOGY AND SOCIETY MAGAZINE | 2019年 / 38卷 / 02期

关键词：

BROAD CONSENT; FUTURE; DONORS;

D O I：

10.1109/MTS.2019.2913072

中图分类号：

TM [电工技术]; TN [电子技术、通信技术];

学科分类号：

0808 ; 0809 ;

摘要：

Biobanks are not new. However, the scope of their application is growing, especially in genomics. Biobanks are also currently being reorganized to enable more genomic samples to be made available for different types of studies. Some future uses of the biobanks cannot be anticipated. © 1982-2012 IEEE.

引用

页码：62 / 70

页数：9

共 6 条

[1] Broad consent versus dynamic consent in biobank research: Is passive participation an ethical problem?
Steinsbekk, Kristin Solum
Myskja, Bjorn Kare
Solberg, Berge
EUROPEAN JOURNAL OF HUMAN GENETICS, 2013, 21 (09) : 897 - 902
[2] A Preliminary Study to Explore the Informed Consent Approach and the Ethical Challenges in the Malaysian Biobanking for Research
Amnah Azahar
Aimi Nadia Mohd Yusof
Zahir Izuan Azhar
Asian Bioethics Review, 2023, 15 : 141 - 154
[3] A Preliminary Study to Explore the Informed Consent Approach and the Ethical Challenges in the Malaysian Biobanking for Research
Azahar, Amnah
Yusof, Aimi Nadia Mohd
Azhar, Zahir Izuan
ASIAN BIOETHICS REVIEW, 2023, 15 (02) : 141 - 154
[4] Research participants' perceptions and views on consent for biobank research: a review of empirical data and ethical analysis
D'Abramo, Flavio
Schildmann, Jan
Vollmann, Jochen
BMC MEDICAL ETHICS, 2015, 16
[5] Broad consent versus dynamic consent in biobank research: Is passive participation an ethical problem?
Kristin Solum Steinsbekk
Bjørn Kåre Myskja
Berge Solberg
European Journal of Human Genetics, 2013, 21 : 897 - 902
[6] Ethical Dimensions of Dynamic Consent in Data-Intense Biomedical Research-Paradigm Shift, or Red Herring?
Schmietow, Bettina
ETHICS AND GOVERNANCE OF BIOMEDICAL RESEARCH: THEORY AND PRACTICE, 2016, 4 : 197 - 209

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