Development the Care Evaluation Scale Version 2.0: a modified version of a measure for bereaved family members to evaluate the structure and process of palliative care for cancer patient

被引:34
作者
Miyashita, Mitsunori [1 ]
Aoyama, Maho [1 ]
Nakahata, Misato [1 ]
Yamada, Yuji [2 ]
Abe, Mutsumi [3 ]
Yanagihara, Kazuhiro [4 ]
Shirado, Akemi [5 ]
Shutoh, Mariko [6 ,7 ]
Okamoto, Yoshiaki [8 ]
Hamano, Jun [9 ]
Miyamoto, Aoi [1 ]
Yoshida, Saki [1 ]
Sato, Kazuki [1 ]
Hirai, Kei [5 ,10 ,11 ]
Morita, Tatsuya [12 ]
机构
[1] Tohoku Univ, Grad Sch Med, Dept Palliat Nursing Hlth Sci, Aoba Ku, 2-1 Seiryo Machi, Sendai, Miyagi, Japan
[2] Aiwa Hosp, Nagano, Japan
[3] Matsue City Hosp, Dept Palliat Care & Pain Clin, Matsue, Shimane, Japan
[4] Kansai Elect Power Hosp, Dept Med Oncol, Osaka, Japan
[5] Seirei Mikatahara Hosp, Palliat Care Team & Seirei Hosp, Dept Palliat & Support Care, Hamamatsu, Shizuoka, Japan
[6] Oita City Med Associat Almeida Mem Hosp, Dept Palliat Med, Oita, Japan
[7] Wata Clin, Tokyo, Japan
[8] Ashiya Municipal Hosp, Dept Pharm, Ashiya, Japan
[9] Univ Tsukuba, Fac Med, Div Clin Med, Tsukuba, Ibaraki, Japan
[10] Osaka Univ, Inst Acad Initiat, Osaka, Japan
[11] Osaka Univ, Grad Sch Human Sci, Osaka, Japan
[12] Seirei Mikatahara Hosp, Palliat Care Team & Seirei Hosp, Dept Palliat & Support Care, Shizuoka, Japan
基金
日本学术振兴会;
关键词
Palliative care; Quality of care; Neoplasms; Questionnaires; Bereavement; OF-LIFE CARE; COMPLICATED GRIEF; SATISFACTION; QUALITY; VALIDITY; DEATH; QUESTIONNAIRE; DETERMINANTS; VALIDATION; PREDICTORS;
D O I
10.1186/s12904-017-0183-2
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: The Care Evaluation Scale (CES1.0) was designed to allow bereaved family members to evaluate the structure and process of care, but has been associated with a high frequency of misresponses. The objective of this study was to develop a modified version of CES1.0 (CES2.0) that would eliminate misresponses while maintaining good reliability and validity. Methods: We conducted a cross-sectional questionnaire survey by mail in October 2013. The participants were bereaved family members of patients who died from cancer in seven institutions in Japan. All family members were asked to complete CES2.0, the short form CES1.0, items on overall care satisfaction, the Family Satisfaction with Advanced Cancer Care (FAMCARE) Scale, the Patient Health Questionnaire-9 (PHQ-9) and the Brief Grief Questionnaire (BGQ). To examine test- retest reliability, all participants were asked to complete a second CES2.0. Results: Of 596 questionnaires sent, 461 (77%) were returned and 393 (66%) were analyzed. In the short form CES1.0, 17.1% of the responses were identified as misresponses. No misresponses were found in CES2.0. We identified 10 CES2.0 subscales similar to those in CES1.0 using exploratory factor analysis. Cronbach's alpha was 0.96, and the intraclass correlation coefficient was 0.83. Correlations were found between CES2.0 and overall satisfaction (r = 0.83) and FAMCARE (r = 0.58). In addition, total CES2.0 scores were negatively correlated with the PHQ 9 (r = - 0.22) and BGQ (r = - 0.10). Conclusion: These results suggest that CES2.0 eliminated misresponses associated with CES1.0 while maintaining good reliability and validity and greatly improving test- retest reliability.
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页码:1 / 10
页数:10
相关论文
共 25 条
[1]   A randomised controlled trial of postal versus interviewer administration of a questionnaire measuring satisfaction with, and use of, services received in the year before death [J].
Addington-Hall, J ;
Walker, L ;
Jones, C ;
Karlsen, S ;
McCarthy, M .
JOURNAL OF EPIDEMIOLOGY AND COMMUNITY HEALTH, 1998, 52 (12) :802-807
[2]   Using satisfaction to measure the quality of palliative care: a review of the literature [J].
Aspinal, F ;
Addington-Hall, J ;
Hughes, R ;
Higginson, IJ .
JOURNAL OF ADVANCED NURSING, 2003, 42 (04) :324-339
[3]   A measure of the quality of dying and death: Initial validation using after-death interviews with family members [J].
Curtis, JR ;
Patrick, DL ;
Engelberg, RA ;
Norris, K ;
Asp, C ;
Byock, I .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2002, 24 (01) :17-31
[4]   THE QUALITY OF CARE - HOW CAN IT BE ASSESSED [J].
DONABEDIAN, A .
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 1988, 260 (12) :1743-1748
[5]   Determinants of informal caregivers' satisfaction with services for dying cancer patients [J].
Fakhoury, W ;
McCarthy, M ;
AddingtonHall, J .
SOCIAL SCIENCE & MEDICINE, 1996, 42 (05) :721-731
[6]   Brief Measure for Screening Complicated Grief: Reliability and Discriminant Validity [J].
Ito, Masaya ;
Nakajima, Satomi ;
Fujisawa, Daisuke ;
Miyashita, Mitsunori ;
Kim, Yoshiharu ;
Shear, M. Katherine ;
Ghesquiere, Angela ;
Wall, Melanie M. .
PLOS ONE, 2012, 7 (02)
[7]   Predictors of patient satisfaction [J].
Jackson, JL ;
Chamberlin, J ;
Kroenke, K .
SOCIAL SCIENCE & MEDICINE, 2001, 52 (04) :609-620
[8]   VALIDITY AND RELIABILITY TESTING OF THE FAMCARE SCALE - MEASURING FAMILY SATISFACTION WITH ADVANCED CANCER CARE [J].
KRISTJANSON, LJ .
SOCIAL SCIENCE & MEDICINE, 1993, 36 (05) :693-701
[9]   The PHQ-9 - Validity of a brief depression severity measure [J].
Kroenke, K ;
Spitzer, RL ;
Williams, JBW .
JOURNAL OF GENERAL INTERNAL MEDICINE, 2001, 16 (09) :606-613
[10]   SOCIAL PSYCHOLOGICAL DETERMINANTS OF PATIENT SATISFACTION - A TEST OF 5 HYPOTHESES [J].
LINDERPELZ, S .
SOCIAL SCIENCE & MEDICINE, 1982, 16 (05) :583-589