Development of a measure of caregiver burden in paediatric chronic kidney disease: The Paediatric Renal Caregiver Burden Scale

被引：48

作者：

Parham, Rhian ^{[1
]}

Jacyna, Nicola ^{[1
]}

Hothi, Daljit ^{[2
]}

Marks, Stephen D. ^{[2
]}

Holttum, Sue ^{[1
]}

Camic, Paul ^{[1
]}

机构：

[1] Canterbury Christ Church Univ, Canterbury, Kent, England

[2] Great Ormond St Hosp Children NHS Fdn Trust, London, England

来源：

JOURNAL OF HEALTH PSYCHOLOGY | 2016年 / 21卷 / 02期

关键词：

caregiver burden; measure development; paediatric chronic kidney disease; QUALITY-OF-LIFE; TRANSPLANT RECIPIENTS; DIALYSIS TREATMENT; CHILDREN; VALIDATION; FAMILIES; PARENTS; STRESS; CARE; QUESTIONNAIRE;

D O I：

10.1177/1359105314524971

中图分类号：

B849 [应用心理学];

学科分类号：

040203 ;

摘要：

To inform the development of a measure of caregiver burden for carers of children with chronic kidney disease, interviews were conducted with 16 caregivers and 10 renal healthcare professionals. A pool of 97 items generated from interviews was reduced to 60 items following review. A piloting exercise provided evidence for the usability, readability and relevance of items and informed further adaptations resulting in the 51-item Paediatric Renal Caregiver Burden Scale. Further to assessment of its psychometric properties, it is hoped that that the Paediatric Renal Caregiver Burden Scale will serve as a useful measure of caregiver burden in paediatric chronic kidney disease.

引用

页码：193 / 205

页数：13

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