Mental Health and Well-Being in Mothers of Children With Rare Genetic Syndromes Showing Chronic Challenging Behavior: A Cross-Sectional and Longitudinal Study

被引：22

作者：

Adams, Dawn ^{[1
,2
]}

Clarke, Samantha ^{[2
]}

Griffith, Gemma ^{[3
]}

Howlin, Pat ^{[4
]}

Moss, Jo ^{[2
]}

Petty, Jane ^{[2
,4
]}

Tunnicliffe, Penny ^{[2
]}

Oliver, Chris ^{[2
]}

机构：

[1] Griffith Univ, Brisbane, Qld, Australia

[2] Univ Birmingham, Birmingham, W Midlands, England

[3] Bangor Univ, Bangor, Gwynedd, Wales

[4] Kings Coll London, London, England

来源：

AJIDD-AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES | 2018年 / 123卷 / 03期

基金：

美国国家卫生研究院;

关键词：

intellectual disabilities; syndrome; challenging behavior; mental health; AUTISM SPECTRUM DISORDER; DEVELOPMENTAL-DISABILITIES; HOSPITAL ANXIETY; YOUNG-CHILDREN; DEPRESSION; STRESS; ANGELMAN; FAMILIES; PARENTS; ADULTS;

D O I：

10.1352/1944-7558-123.3.241

中图分类号：

G76 [特殊教育];

学科分类号：

040109 ;

摘要：

It is well documented that mothers of children with challenging behavior (CB) experience elevated levels of stress and that this persists over time, but less is known about the experience of mothers of children with rare genetic syndromes. This article describes 2 studies, 1 cross-sectional and 1 longitudinal, comparing well-being in mothers of children with Angelman, Cornelia de Lange and Cri du Chat syndrome who have either shown chronic CB (n = 18) or low/no CB (n = 26) in the preceding 7 years. The presence of chronic, long-term CB increased maternal stress but not depression or anxiety, and did not influence positive well-being. Stress relating specifically to their child's genetic syndrome reduced with age, highlighting the need for further exploration in this area.

引用

页码：241 / 253

页数：13

共 42 条

[1] Coping Strategies in Mothers of Children with Intellectual Disabilities Showing Multiple Forms of Challenging Behaviour: Associations with Maternal Mental Health [J].