Improving Family Intensive Care Unit Experiences at the End of Life: Barriers and Facilitators

被引:14
作者
Ganz, Freda DeKeyser [1 ]
机构
[1] Hadassah Hebrew Univ, Dept Chair, Sch Nursing, Jerusalem, Israel
关键词
SURROGATE DECISION-MAKERS; OF-LIFE; PALLIATIVE CARE; CRITICALLY-ILL; GOOD DEATH; SUSTAINING TREATMENTS; CENTERED CARE; NURSES; ICU; COMMUNICATION;
D O I
10.4037/ccn2019721
中图分类号
R4 [临床医学];
学科分类号
1002 ; 100602 ;
摘要
Experiencing the end of life of a family member in the intensive care unit is clearly difficult. An important role of critical care nurses is to help family members through this challenging period. This article highlights a few clinically significant barriers and facilitators related to improving family experiences at the patient's end of life that have received less attention in the literature thus far. Facilitators include specific aspects of communication, the nurse's role as the coordinator of care, bereavement care, promoting a "good death," and caring for health care providers. Barriers include medical uncertainty and differences in values and culture.
引用
收藏
页码:52 / 58
页数:7
相关论文
共 59 条
[51]   Do Everything! For the Patient, Their Family, or Ourselves? A Surgical Resident's Experience [J].
Rochon, Ryan .
JOURNAL OF PALLIATIVE MEDICINE, 2016, 19 (01) :112-113
[52]   "Her Husband Doesn't Speak Much English": Conducting a Family Meeting with an Interpreter [J].
Schenker, Yael ;
Smith, Alexander K. ;
Arnold, Robert M. ;
Fernandez, Alicia .
JOURNAL OF PALLIATIVE MEDICINE, 2012, 15 (04) :494-498
[53]   Advocacy at end-of-life research design: An ethnographic study of an ICU [J].
Sorensen, Roslyn ;
Ledema, Rick .
INTERNATIONAL JOURNAL OF NURSING STUDIES, 2007, 44 (08) :1343-1353
[54]   A Decade of Changes in Family Caregivers' Preferences for Life-Sustaining Treatments for Terminally Ill Cancer Patients at End of Life in the Context of a Family-Oriented Society [J].
Tang, Siew Tzuh ;
Wen, Fur-Hsing ;
Liu, Li Ni ;
Chiang, Ming-Chu ;
Lee, Shiuyu C. K. ;
Chou, Man Chun ;
Feng, Wei-Lien ;
Lin, Yu-Chuan ;
Liu, I-Ping ;
Kuo, Ya-Hui ;
Chi, Shu Ching ;
Lee, Kwo C. .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2016, 51 (05) :907-+
[55]   Recommendations for end-of-life care in the intensive care unit: The Ethics Committee of the Society of Critical Care Medicine [J].
Truog, RD ;
Cist, AFM ;
Brackett, SE ;
Burns, JP ;
Curley, MAQ ;
Danis, M ;
DeVita, MA ;
Rosenbaum, SH ;
Rothenberg, DM ;
Sprung, CL ;
Webb, SA ;
Wlody, GS ;
Hurford, WE .
CRITICAL CARE MEDICINE, 2001, 29 (12) :2332-2348
[56]   Conflicts between healthcare professionals and families of a multi-ethnic patient population during critical care: an ethnographic study [J].
Van Keer, Rose-Lima ;
Deschepper, Reginald ;
Francke, Anneke L. ;
Huyghens, Luc ;
Bilsen, Johan .
CRITICAL CARE, 2015, 19
[57]  
Vanderspank-Wright Brandi, 2011, Dynamics, V22, P31
[58]   Family Engagement Regarding the Critically Ill Patient [J].
Weaver, Jessica L. ;
Bradley, Ciaran T. ;
Brasel, Karen J. .
SURGICAL CLINICS OF NORTH AMERICA, 2012, 92 (06) :1637-+
[59]   Barriers to Goals of Care Discussions With Seriously Ill Hospitalized Patients and Their Families A Multicenter Survey of Clinicians [J].
You, John J. ;
Downar, James ;
Fowler, Robert A. ;
Lamontagne, Francois ;
Ma, Irene W. Y. ;
Jayaraman, Dev ;
Kryworuchko, Jennifer ;
Strachan, Patricia H. ;
Ilan, Roy ;
Nijjar, Aman P. ;
Neary, John ;
Shik, John ;
Brazil, Kevin ;
Patel, Amen ;
Wiebe, Kim ;
Albert, Martin ;
Palepu, Anita ;
Nouvet, Elysee ;
des Ordons, Amanda Roze ;
Sharma, Nishan ;
Abdul-Razzak, Amane ;
Jiang, Xuran ;
Day, Andrew ;
Heyland, Daren K. .
JAMA INTERNAL MEDICINE, 2015, 175 (04) :549-556