The importance of transition from pediatric to adult rheumatology care in juvenile idiopathic arthritis

被引:9
作者
de Oliveira, Rodrigo Joel [1 ,2 ]
Kishimoto, Simone Thiemi [2 ,3 ]
de Souza, Debora Pessoa [1 ,2 ]
Fernandes, Paula Teixeira [4 ]
Marini, Roberto [5 ,6 ]
Appenzeller, Simone [2 ,7 ,8 ]
机构
[1] Univ Estadual Campinas, Sch Med Sci, Campinas, Brazil
[2] Univ Estadual Campinas, Sch Med Sci, Autoimmun Lab, Campinas, Brazil
[3] Univ Estadual Campinas, Sch Med Sci, Pathophysiol Program, Campinas, Brazil
[4] Univ Estadual Campinas, Fac Phys Educ, Dept Sport Sci, Campinas, Brazil
[5] Sch Med Sci, Dept Orthoped, Campinas, Brazil
[6] Univ Campinas UNICAMP, Campinas, Brazil
[7] Sch Med Sci, Rheumatol Unit, Dept Med, Sao Paulo, Brazil
[8] Univ Campinas UNICAMP, Sao Paulo, Brazil
基金
巴西圣保罗研究基金会;
关键词
Transition of care; juvenile idiopathic arthritis; long-term outcome; young adult clinic; Flare; SLE; risk factors;
D O I
10.1080/1744666X.2020.1865157
中图分类号
R392 [医学免疫学]; Q939.91 [免疫学];
学科分类号
100102 ;
摘要
Introduction: Juvenile idiopathic arthritis (JIA) is the most common rheumatic inflammatory condition in childhood. The long-term morbidity, mortality, and quality of life have improved with the earlier use of disease-modifying drugs (DMARDs) and the availability of biology disease-modifying drugs (bDMARDs). Despite the improvement of treatment, around 50% of the patients reach adulthood with articular and/or extra articular disease activity. A careful planned transition from pediatric to adult care is necessary to reduce the loss of follow-up that is associated with stopping medications, flares, and disability due to untreated arthritis or uveitis. Areas covered: This narrative review provides an overview of the importance of transition in JIA Articles were selected from Pubmed searches. Expert opinion: JIA patients, family, and healthcare workers have to be trained to provide an effective transition plan, based on local and national policies. Important aspects such as expectations, maturation, disease characteristics, disease activity, adherence, disability, and psychological aspects among others have to be considered and addressed during the transition phase to improve self-esteem, self-assurance, and quality of life.
引用
收藏
页码:155 / 161
页数:7
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