Assessment of Quality of Life of Family Members of Inpatients with End-Stage Disease

被引:2
作者
Buzgova, Radka [1 ]
Kozakova, Radka [1 ]
Sikorova, Lucie [1 ]
机构
[1] Univ Ostrava, Fac Med, Dept Nursing & Midwifery, Ostrava 70030, Czech Republic
关键词
palliative care; family members; quality of life; PALLIATIVE CARE; QOLLTI-F; CAREGIVERS; NEEDS; VALIDATION; SETTINGS;
D O I
暂无
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: An important aim of palliative care is to ensure the highest possible quality of life (QoL) for the family members of patients. Aim: We aimed to determine the QoL of family members of hospitalized patients with end-stage disease, as well as differences in QoL based on socio-demographic characteristics and the patient's functional status,psychological distress, and QoL. Methods: Study participants were 292 family members of terminally ill patients at University Hospital, Ostrava, Czech Republic. To evaluate family members' QoL, we used the Quality of Life in Life-Threatening Illness Family Carer Version (QOLLTI-F). We used the Hospital Anxiety and Depression Scale (HADS) and the Karnofsky Performance Status (KPS) Scale to assess patients' functional status and psychological distress. Results: A statistically significant difference was found in QoL evaluation based on family members' socio-demographic characteristics in education, employment, and age. A significantly lower QoL score was observed for patients' life partners in six domains. A correlation was found between patients' poorer functional status and family members' lower QoL. We found lower global QoL in family members of patients with depression. Conclusion: Family support is a cornerstone of palliative care. Palliative care professionals should focus on at-risk family members the life partners of patients, the unemployed, younger people, and those whose ill loved one has a poor functional status.
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页码:250 / 257
页数:8
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