The Association of Spiritual Care Providers' Activities With Family Members' Satisfaction With Care After a Death in the ICU

被引:88
作者
Johnson, Jeffrey R. [1 ]
Engelberg, Ruth A. [1 ]
Nielsen, Elizabeth L. [1 ]
Kross, Erin K. [1 ]
Smith, Nicholas L. [2 ,3 ,4 ]
Hanada, Julie C. [5 ]
O'Mahoney, Sean K. Doll [5 ]
Curtis, J. Randall [1 ]
机构
[1] Univ Washington, Harborview Med Ctr, Dept Med, Div Pulm & Crit Care Med, Seattle, WA 98104 USA
[2] Univ Washington, Sch Publ Hlth, Dept Epidemiol, Seattle, WA 98195 USA
[3] Seattle Epidemiol Res & Informat Ctr, Off Res & Dev, Seattle, WA USA
[4] Grp Hlth Res Inst, Grp Hlth, Seattle, WA USA
[5] Univ Washington, Harborview Med Ctr, Dept Spiritual Care, Seattle, WA 98104 USA
基金
美国国家卫生研究院;
关键词
critical care; death; dying; end-of-life care; intensive care; palliative care; spiritual care; END-OF-LIFE; PALLIATIVE CARE; CANCER-PATIENTS; POSTTRAUMATIC STRESS; ADVANCED ILLNESS; DECISION-MAKING; MEDICAL-CARE; UNIT; SUPPORT; ILL;
D O I
10.1097/CCM.0000000000000412
中图分类号
R4 [临床医学];
学科分类号
1002 ; 100602 ;
摘要
Objectives: Spiritual distress is common in the ICU, and spiritual care providers are often called upon to provide care for patients and their families. Our goal was to evaluate the activities spiritual care providers' conduct to support patients and families and whether those activities are associated with family satisfaction with ICU care. Design: Prospective cohort study. Setting: Three hundred fifty-bed tertiary care teaching hospital with 65 ICU beds. Subjects: Spiritual care providers and family members of patients who died in the ICU or within 30 hours of transfer from the ICU. Interventions: None. Measurements and Main Results: Spiritual care providers completed surveys reporting their activities. Family members completed validated measures of satisfaction with care and satisfaction with spiritual care. Clustered regression was used to assess the association between activities completed by spiritual care providers and family ratings of care. Of 494 eligible patients, 275 family members completed surveys (response rate, 56%). Fifty-seven spiritual care providers received surveys relating to 268 patients, completing 285 surveys for 244 patients (response rate, 91%). Spiritual care providers commonly reported activities related to supporting religious and spiritual needs (>= 90%) and providing support for family feelings (90%). Discussions about the patient's wishes for end-of-life care and a greater number of spiritual care activities performed were both associated with increased overall family satisfaction with ICU care (p < 0.05). Discussions about a patient's end-of-life wishes, preparation for a family conference, and total number of activities performed were associated with improved family satisfaction with decision-making in the ICU (p < 0.05). Conclusions: Spiritual care providers engage in a variety of activities with families of ICU patients; several are associated with increased family satisfaction with ICU care in general and decision-making in the ICU specifically. These findings provide insight into spiritual care provider activities and provide guidance for interventions to improve spiritual care delivered to families of critically ill patients.
引用
收藏
页码:1991 / 2000
页数:10
相关论文
共 36 条
[1]   Families looking back: One year after discussion of withdrawal or withholding of life-sustaining support [J].
Abbott, KH ;
Sago, JG ;
Breen, CM ;
Abernethy, AP ;
Tulsky, JA .
CRITICAL CARE MEDICINE, 2001, 29 (01) :197-201
[2]   Passive decision-making preference is associated with anxiety and depression in relatives of patients in the intensive care unit [J].
Anderson, Wendy G. ;
Arnold, Robert M. ;
Angus, Derek C. ;
Bryce, Cindy L. .
JOURNAL OF CRITICAL CARE, 2009, 24 (02) :249-254
[3]   Charting (and publishing) the boundaries of critical illness [J].
Angus, DC .
AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 2005, 171 (09) :938-939
[4]  
[Anonymous], 2008, US RELIG LANDSCAPE S
[5]   Is failure to meet spiritual needs associated with cancer patients' perceptions of quality of care and their satisfaction with care? [J].
Astrow, Alan B. ;
Wexler, Ann ;
Texeira, Kenneth ;
He, M. Kai ;
Sulmasy, Daniel P. .
JOURNAL OF CLINICAL ONCOLOGY, 2007, 25 (36) :5753-5757
[6]   Risk of post-traumatic stress symptoms in family members of intensive care unit patients [J].
Azoulay, E ;
Pochard, F ;
Kentish-Barnes, N ;
Chevret, S ;
Aboab, J ;
Adrie, C ;
Annane, D ;
Bleichner, G ;
Bollaert, PE ;
Darmon, M ;
Fassier, T ;
Galliot, R ;
Garrouste-Orgeas, M ;
Goulenok, C ;
Goldgran-Toledano, D ;
Hayon, J ;
Jourdain, M ;
Kaidomar, M ;
Laplace, C ;
Larché, J ;
Liotier, J ;
Papazian, L ;
Poisson, C ;
Reignier, J ;
Saidi, F ;
Schlemmer, B .
AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 2005, 171 (09) :987-994
[7]   Support of cancer patients' spiritual needs and associations with medical care costs at the end of life [J].
Balboni, Tracy ;
Balboni, Michael ;
Paulk, M. Elizabeth ;
Phelps, Andrea ;
Wright, Alexi ;
Peteet, John ;
Block, Susan ;
Lathan, Chris ;
VanderWeele, Tyler ;
Prigerson, Holly .
CANCER, 2011, 117 (23) :5383-5391
[8]   Religiousness and spiritual support among advanced cancer patients and associations with end-of-life treatment preferences and quality of life [J].
Balboni, Tracy A. ;
Vanderwerker, Lauren C. ;
Block, Susan D. ;
Paulk, M. Elizabeth ;
Lathan, Christopher S. ;
Peteet, John R. ;
Prigerson, Holly G. .
JOURNAL OF CLINICAL ONCOLOGY, 2007, 25 (05) :555-560
[9]   Provision of Spiritual Care to Patients With Advanced Cancer: Associations With Medical Care and Quality of Life Near Death [J].
Balboni, Tracy Anne ;
Paulk, Mary Elizabeth ;
Balboni, Michael J. ;
Phelps, Andrea C. ;
Loggers, Elizabeth Trice ;
Wright, Alexi A. ;
Block, Susan D. ;
Lewis, Eldrin F. ;
Peteet, John R. ;
Prigerson, Holly Gwen .
JOURNAL OF CLINICAL ONCOLOGY, 2010, 28 (03) :445-452
[10]   "It's not just what the doctor tells me:" Factors that influence surrogate decision-makers' perceptions of prognosis [J].
Boyd, Elizabeth A. ;
Lo, Bernard ;
Evans, Leah R. ;
Malvar, Grace ;
Apatira, Latifat ;
Luce, John M. ;
White, Douglas B. .
CRITICAL CARE MEDICINE, 2010, 38 (05) :1270-1275