Rehabilitation services lockdown during the COVID-19 emergency: the mental health response of caregivers of children with neurodevelopmental disabilities

被引:51
作者
Grumi, Serena [1 ]
Provenzi, Livio [1 ]
Gardani, Alice [1 ]
Aramini, Valentina [1 ]
Dargenio, Erika [1 ]
Naboni, Cecilia [1 ]
Vacchini, Valeria [1 ]
Borgatti, Renato [1 ,2 ]
Baschenis, Ilaria [1 ]
Berardinelli, Angela [1 ]
Bernasconi, Laura [1 ]
Capone, Luca [1 ]
Caporali, Camilla [1 ]
Carpani, Adriana [1 ]
Cassola, Stefano [1 ]
Chiappedi, Matteo [1 ]
Costantino, Raissa Francesca [1 ]
De Giorgis, Valentina [1 ]
Ercolino, Elisa [1 ]
Ferro, Federica [1 ]
Luparia, Antonella [1 ]
Magni, Chiara [1 ]
Martignoni, Alessandra [1 ]
Mensi, Martina [1 ,2 ]
Olivier, Lucrezia [1 ]
Orcesi, Simona [1 ,2 ]
Paini, Daria [1 ]
Saligari, Elena [1 ]
Signorini, Sabrina [1 ]
Tosi, Martina [1 ]
Varesio, Costanza [1 ]
Vlacos, Elena [1 ]
Zanaboni, Martina Paola [1 ]
机构
[1] IRCCS Mondino Fdn, Child Neurol & Psychiat Unit, Via Mondino 2, I-27100 Pavia, Pv, Italy
[2] Univ Pavia, Dept Brain & Behav Sci, Pavia, Italy
关键词
COVID-19; caregivers; children; disability; healthcare; epidemic; parents; rehabilitation; DEPRESSION; PICCOLO; PARENTS;
D O I
10.1080/09638288.2020.1842520
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Background The present study investigated the impact of the COVID-19-related rehabilitation services lockdown on the mental health of caregivers of children with neurodevelopmental disabilities. Methods Between 26 March and 11 May 2020, 84 caregivers filled out ad-hoc and standardized questionnaires through an online survey in order to measure their psychological response to the emergency and lockdown as well as their levels of parenting stress, anxiety and depression. Results Worries about COVID-19 contagion and concerns for the child left without rehabilitation programs were the greatest sources of mental health burden for caregivers. Nonetheless, only the concerns for the child were significantly associated with caregivers' reports of stress, depressive and anxious symptoms. Discussion These findings highlight the burden faced by caregivers of children with neurodevelopmental disabilities during the COVID-19 emergency in Italy. These families should be considered as a high-risk population that requires dedicated healthcare attention, such as promoting continuity of care by investing in tele-rehabilitation programs.
引用
收藏
页码:27 / 32
页数:6
相关论文
共 25 条
[1]  
Abidin R., 1983, PARENTING STRESS IND
[2]   Parenting style impacts on quality of life in children with cerebral palsy [J].
Aran, Adi ;
Shalev, Ruth S. ;
Biran, Gau ;
Gross-Tsur, Varda .
JOURNAL OF PEDIATRICS, 2007, 151 (01) :56-60
[3]   How is COVID-19 Affecting the Mental Health of Children with Special Educational Needs and Disabilities and Their Families? [J].
Asbury, Kathryn ;
Fox, Laura ;
Deniz, Emre ;
Code, Aimee ;
Toseeb, Umar .
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2021, 51 (05) :1772-1780
[4]   Parents' perceptions of disclosure of the diagnosis of cerebral palsy [J].
Baird, G ;
McConachie, H ;
Scrutton, D .
ARCHIVES OF DISEASE IN CHILDHOOD, 2000, 83 (06) :475-480
[5]   PSYCHOMETRIC PROPERTIES OF THE BECK DEPRESSION INVENTORY - 25 YEARS OF EVALUATION [J].
BECK, AT ;
STEER, RA ;
GARBIN, MG .
CLINICAL PSYCHOLOGY REVIEW, 1988, 8 (01) :77-100
[6]   COVID-19 and child and adolescent psychiatry: an unexpected blessing for part of our population? [J].
Bruining, Hilgo ;
Bartels, Meike ;
Polderman, Tinca J. C. ;
Popma, Arne .
EUROPEAN CHILD & ADOLESCENT PSYCHIATRY, 2021, 30 (07) :1139-1140
[7]   Investing in early human development: Timing and economic efficiency [J].
Doyle, Orla ;
Harmon, Colm P. ;
Heckman, James J. ;
Tremblay, Richard E. .
ECONOMICS & HUMAN BIOLOGY, 2009, 7 (01) :1-6
[8]   New clinical needs and strategies for care in children with neurodisability during COVID-19 [J].
Fazzi, Elisa ;
Galli, Jessica .
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2020, 62 (07) :879-880
[9]   Parent-Infant Interaction during the First Year of Life in Infants at High Risk for Cerebral Palsy: A Systematic Review of the Literature [J].
Festante, F. ;
Antonelli, C. ;
Chorna, O. ;
Corsi, G. ;
Guzzetta, A. .
NEURAL PLASTICITY, 2019, 2019
[10]   The Face-to-Face Still-Face (FFSF) Paradigm in Clinical Settings: Socio-Emotional Regulation Assessment and Parental Support With Infants With Neurodevelopmental Disabilities [J].
Giusti, Lorenzo ;
Provenzi, Livio ;
Montirosso, Rosario .
FRONTIERS IN PSYCHOLOGY, 2018, 9