Rehabilitation services lockdown during the COVID-19 emergency: the mental health response of caregivers of children with neurodevelopmental disabilities

被引:49
|
作者
Grumi, Serena [1 ]
Provenzi, Livio [1 ]
Gardani, Alice [1 ]
Aramini, Valentina [1 ]
Dargenio, Erika [1 ]
Naboni, Cecilia [1 ]
Vacchini, Valeria [1 ]
Borgatti, Renato [1 ,2 ]
Baschenis, Ilaria [1 ]
Berardinelli, Angela [1 ]
Bernasconi, Laura [1 ]
Capone, Luca [1 ]
Caporali, Camilla [1 ]
Carpani, Adriana [1 ]
Cassola, Stefano [1 ]
Chiappedi, Matteo [1 ]
Costantino, Raissa Francesca [1 ]
De Giorgis, Valentina [1 ]
Ercolino, Elisa [1 ]
Ferro, Federica [1 ]
Luparia, Antonella [1 ]
Magni, Chiara [1 ]
Martignoni, Alessandra [1 ]
Mensi, Martina [1 ,2 ]
Olivier, Lucrezia [1 ]
Orcesi, Simona [1 ,2 ]
Paini, Daria [1 ]
Saligari, Elena [1 ]
Signorini, Sabrina [1 ]
Tosi, Martina [1 ]
Varesio, Costanza [1 ]
Vlacos, Elena [1 ]
Zanaboni, Martina Paola [1 ]
机构
[1] IRCCS Mondino Fdn, Child Neurol & Psychiat Unit, Via Mondino 2, I-27100 Pavia, Pv, Italy
[2] Univ Pavia, Dept Brain & Behav Sci, Pavia, Italy
关键词
COVID-19; caregivers; children; disability; healthcare; epidemic; parents; rehabilitation; DEPRESSION; PICCOLO; PARENTS;
D O I
10.1080/09638288.2020.1842520
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Background The present study investigated the impact of the COVID-19-related rehabilitation services lockdown on the mental health of caregivers of children with neurodevelopmental disabilities. Methods Between 26 March and 11 May 2020, 84 caregivers filled out ad-hoc and standardized questionnaires through an online survey in order to measure their psychological response to the emergency and lockdown as well as their levels of parenting stress, anxiety and depression. Results Worries about COVID-19 contagion and concerns for the child left without rehabilitation programs were the greatest sources of mental health burden for caregivers. Nonetheless, only the concerns for the child were significantly associated with caregivers' reports of stress, depressive and anxious symptoms. Discussion These findings highlight the burden faced by caregivers of children with neurodevelopmental disabilities during the COVID-19 emergency in Italy. These families should be considered as a high-risk population that requires dedicated healthcare attention, such as promoting continuity of care by investing in tele-rehabilitation programs.
引用
收藏
页码:27 / 32
页数:6
相关论文
共 50 条
  • [1] Mental health challenges during COVID-19: perspectives from parents with children with neurodevelopmental disabilities
    Currie, Genevieve
    Finlay, Brittany
    Seth, Ashish
    Roth, Christiane
    Elsabbagh, Myada
    Hudon, Anne
    Hunt, Matthew
    Jodoin, Sebastien
    Lach, Lucyna
    Lencucha, Raphael
    Nicholas, David B.
    Shakako, Keiko
    Zwicker, Jennifer
    INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING, 2022, 17 (01)
  • [2] Children and Families' mental health during the first COVID-19 lockdown in Italy
    Ferraro, Laura
    La Cascia, Caterina
    Daino, Marco
    Tripoli, Giada
    Maniaci, Giuseppe
    Santorio, Crocettarachele
    Seminerio, Fabio
    Lo Baido, Rosa
    La Barbera, Daniele
    MEDITERRANEAN JOURNAL OF CLINICAL PSYCHOLOGY, 2021, 9 (02): : 1 - 25
  • [3] Impact of COVID-19 Pandemic on Caregivers of Children with Neurodevelopmental Disabilities: A Qualitative Study
    Samyuktha, V. N.
    Grace, Hannah
    Kattula, Dheeraj
    Oommen, Samuel Philip
    JOURNAL OF INDIAN ASSOCIATION FOR CHILD AND ADOLESCENT MENTAL HEALTH, 2024, 20 (04) : 331 - 337
  • [4] Impact of COVID-19 on the Mental Health and Well-Being of Latinx Caregivers of Children with Intellectual and Developmental Disabilities
    Suarez-Balcazar, Yolanda
    Mirza, Mansha
    Errisuriz, Vanessa L.
    Zeng, Weiwen
    Brown, Jasmine P.
    Vanegas, Sandra
    Heydarian, Nazanin
    Parra-Medina, Deborah
    Morales, Paula
    Torres, Hilda
    Magana, Sandy
    INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2021, 18 (15)
  • [5] Mental health outcomes and experiences of family caregivers of children with disabilities during the COVID-19 pandemic in Bolivia
    Urizar, Guido G., Jr.
    Ramirez, Ivonne
    Caicedo, Brianna, I
    Mora, Cindy
    JOURNAL OF COMMUNITY PSYCHOLOGY, 2022, 50 (06) : 2682 - 2702
  • [6] The lockdown experience during the Covid-19 outbreak in parents of children with disabilities: Psychological response and tele-rehabilitation
    Grumi, Serena
    Provenzi, Livio
    Aramini, Valentina
    Dargenio, Erika
    Gardani, Alice
    Naboni, Cecilia
    Vacchini, Valeria
    Manfredini, Vanessa
    Pettenati, Giada
    Borgatti, Renato
    PSICOLOGIA CLINICA DELLO SVILUPPO, 2022, 26 (01) : 101 - 124
  • [7] Mental health risk among children during COVID-19 lockdown
    Asif, Marium
    Ullah, Irfan
    Kumari, Usha
    Munir, Saqib
    Tahir, Muhammad Junaid
    Asghar, Muhammad Sohaib
    JOURNAL OF CHILD AND ADOLESCENT PSYCHIATRIC NURSING, 2022, 35 (01) : 93 - 95
  • [8] Factors Contributing to Psychological Ill-Effects and Resilience of Caregivers of Children with Developmental Disabilities During a Nation-wide Lockdown During the COVID-19 Pandemic
    Lim, Tammy S. H.
    Tan, Mae Yue
    Ramkumar, Aishworiya
    Kang, Ying Qi
    Koh, Magdalena Yvonne
    Shen, Liang
    Chong, Shang Chee
    JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2022, 52 (07) : 3015 - 3025
  • [9] The experiences of mothers of children and young people with intellectual disabilities during the first COVID-19 lockdown period
    Rogers, Gemma
    Perez-Olivas, Gisela
    Stenfert Kroese, Biza
    Patel, Varsha
    Murphy, Glynis
    Rose, John
    Cooper, Vivien
    Langdon, Peter E.
    Hiles, Steve
    Clifford, Clair
    Willner, Paul
    JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2021, 34 (06) : 1421 - 1430
  • [10] Mental Health of Caregivers of Children with Medical Complexity During COVID-19
    Aryee, Emmanuel
    Perrin, James M.
    Clancy, Sandra
    Merrill, Caitlin
    Curran, Marjorie
    Oreskovic, Nicolas M.
    JOURNAL OF DEVELOPMENTAL AND BEHAVIORAL PEDIATRICS, 2023, 44 (03) : e212 - e217