Cancer Survivors' Evolving Perceptions of a New Supportive Virtual Program

被引:0
作者
Robb, Alexandra [1 ]
Brown, Tyler L. [2 ]
Durand, Andrew [1 ,3 ]
Loiselle, Carmen G. [1 ,2 ,4 ,5 ]
机构
[1] McGill Univ, Fac Med & Hlth Sci, Ingram Sch Nursing, Montreal, PQ H3A 2M7, Canada
[2] McGill Univ, Fac Med & Hlth Sci, Dept Oncol, Montreal, PQ H4A 3T2, Canada
[3] Concordia Univ, Fac Arts & Sci, Dept Psychol, Montreal, PQ H4B 1R6, Canada
[4] Jewish Gen Hosp, Lady Davis Inst Med Res, Montreal, PQ H3T 1E2, Canada
[5] Jewish Gen Hosp, Segal Canc Ctr, Montreal, PQ H3T 1E2, Canada
关键词
cancer survivors; cancer care; digital health; social networks; survivorship programs; internet-based interventions; supportive care; POPULATION; CARE;
D O I
10.3390/curroncol29110664
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
This qualitative study begins to explore cancer survivors' evolving perceptions of "Focus on the Future," a 6-week supportive virtual program led by trained volunteers and health care professionals. Through purposive sampling, participants (n = 10) enrolled in the program were individually interviewed shortly before attending, mid-way through, and at program completion. Interviews were digitally recorded and transcribed verbatim. Thematic analysis was used to develop key elements of program expectations and users' perceptions over time. Three themes transpired from the data: (1) Trustworthiness and timeliness of survivorship information and expert guidance, (2) Normalization of survivors' experiences, and (3) Virtual program delivery issues. Some participants' perceptions remained unchanged from pre-program expectations to post-program completion such as appreciating the efficiency of virtual delivery and "health safe" exchanges given the COVID-19 pandemic. In contrast, other perceptions became more polarized including drawbacks related to "more superficial" virtual connections and uneven topic relevance as the program evolved. Program participants appreciated timely information and support from volunteers and experts through virtual means and consecutive weekly sessions. Gauging participants' perceptions across time also offer opportunities to adjust program content and delivery features. Future research should explore key program development strategies to ensure that cancer supportive programs are optimally person-centered, co-designed, and situation-responsive.
引用
收藏
页码:8431 / 8441
页数:11
相关论文
共 36 条
  • [1] Global surveillance of trends in cancer survival 2000-14 (CONCORD-3): analysis of individual records for 37 513 025 patients diagnosed with one of 18 cancers from 322 population-based registries in 71 countries
    Allemani, Claudia
    Matsuda, Tomohiro
    Di Carlo, Veronica
    Harewood, Rhea
    Matz, Melissa
    Niksic, Maja
    Bonaventure, Audrey
    Valkov, Mikhail
    Johnson, Christopher J.
    Esteve, Jacques
    Ogunbiyi, Olufemi J.
    Azevedo e Silva, Gulnar
    Chen, Wan-Qing
    Eser, Sultan
    Engholm, Gerda
    Stiller, Charles A.
    Monnereau, Alain
    Woods, Ryan R.
    Visser, Otto
    Lim, Gek Hsiang
    Aitken, Joanne
    Weir, Hannah K.
    Coleman, Michel P.
    [J]. LANCET, 2018, 391 (10125) : 1023 - 1075
  • [2] Preferences for models of peer support in the digital era: A cross-sectional survey of people with cancer
    Boyes, Allison
    Turon, Heidi
    Hall, Alix
    Watson, Rochelle
    Proietto, Anthony
    Sanson-Fisher, Robert
    [J]. PSYCHO-ONCOLOGY, 2018, 27 (09) : 2148 - 2154
  • [3] Bradshaw C, 2017, GLOB QUALIT NURS RES, V4, DOI 10.1177/2333393617742282
  • [4] Braun V., 2006, Qualitative research in psychology, V3, P77, DOI [10.1191/1478088706qp063oa, doi:10.1191/1478088706qp063oa, DOI 10.1191/1478088706QP063OA]
  • [5] To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales
    Braun, Virginia
    Clarke, Victoria
    [J]. QUALITATIVE RESEARCH IN SPORT EXERCISE AND HEALTH, 2021, 13 (02) : 201 - 216
  • [6] Canadian Partnership Against Cancer, 2018, EXP CANC PAT TRANS S
  • [7] Canadian Partnership Against Cancer, 2018, The 2018 Cancer System Performance Report
  • [8] Cancer survivorship care during COVID-19-perspectives and recommendations from the MASCC survivorship study group
    Chan, Alexandre
    Ashbury, Fred
    Fitch, Margaret, I
    Koczwara, Bogda
    Chan, Raymond Javan
    [J]. SUPPORTIVE CARE IN CANCER, 2020, 28 (08) : 3485 - 3488
  • [9] Cancer Survivors' Experience With Telehealth: A Systematic Review and Thematic Synthesis
    Cox, Anna
    Lucas, Grace
    Marcu, Afrodita
    Piano, Marianne
    Grosvenor, Wendy
    Mold, Freda
    Maguire, Roma
    Ream, Emma
    [J]. JOURNAL OF MEDICAL INTERNET RESEARCH, 2017, 19 (01)
  • [10] Survivorship, Version 2.2018 Clinical Practice Guidelines in Oncology
    Denlinger, Crystal S.
    Sanft, Tara
    Baker, K. Scott
    Broderick, Gregory
    Demark-Wahnefried, Wendy
    Friedman, Debra L.
    Goldman, Mindy
    Hudson, Melissa
    Khakpour, Nazanin
    King, Allison
    Koura, Divya
    Lally, Robin M.
    Langbaum, Terry S.
    McDonough, Allison L.
    Melisko, Michelle
    Montoya, Jose G.
    Mooney, Kathi
    Moslehi, Javid J.
    O'Connor, Tracey
    Overholser, Linda
    Paskett, Electra D.
    Peppercorn, Jeffrey
    Pirl, William
    Rodriguez, M. Alma
    Ruddy, Kathryn J.
    Silverman, Paula
    Smith, Sophia
    Syrjala, Karen L.
    Tevaarwerk, Amye
    Urba, Susan G.
    Wakabayashi, Mark T.
    Zee, Phyllis
    McMillian, Nicole R.
    Freedman-Cass, Deborah A.
    [J]. JOURNAL OF THE NATIONAL COMPREHENSIVE CANCER NETWORK, 2018, 16 (10): : 1216 - 1247