Communicating about obesity and weight-related topics with children with a physical disability and their families: spina bifida as an example

被引:28
作者
McPherson, Amy C. [1 ,2 ,3 ]
Swift, Judy A. [4 ]
Peters, Michelle [1 ]
Lyons, Julia
Knibbe, Tara Joy [1 ]
Church, Paige [5 ,6 ]
Chen, Lorry [7 ]
Farrell, Renee M. [8 ,9 ]
Gorter, Jan Willem [10 ]
机构
[1] Holland Bloorview Kids Rehabil Hosp, Bloorview Res Inst, Toronto, ON, Canada
[2] Univ Toronto, Dalla Lana Sch Publ Hlth, Toronto, ON, Canada
[3] Univ Toronto, Rehabil Sci Inst, Toronto, ON, Canada
[4] Univ Nottingham, Sch Business, Nottingham, England
[5] Holland Bloorview Kids Rehabil Hosp, Child Dev Program, Toronto, ON, Canada
[6] Univ Toronto, Dept Pediat, Toronto, ON, Canada
[7] Holland Bloorview Kids Rehabil Hosp, Nutr Serv Rehabil & Complex Continuing Care, Toronto, ON, Canada
[8] Alberta Childrens Prov Gen Hosp, Dept Pediat, Calgary, AB, Canada
[9] Univ Calgary, Calgary, AB, Canada
[10] McMaster Univ, CanChild Ctr Childhood Disabil Res, Dept Pediat, Hamilton, ON, Canada
关键词
Communication; health promotion; obesity; spina bifida; stigma; SECONDARY CONDITIONS; MANAGEMENT; OVERWEIGHT; ADOLESCENTS; PARENTS; YOUTH; NEEDS; PREVENTION; BEHAVIORS;
D O I
10.3109/09638288.2016.1161845
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Purpose: The purpose of this study was to explore the experiences of children with spina bifida (SB), their families and healthcare professionals (HCPs) when discussing weight-related topics. Method: In-depth qualitative interviews were conducted with HCPs from Canadian outpatient SB clinics (n=13), children aged 6-18 years with SB (n=17) and their parents (n=20). Data were analyzed using a phenomenological approach within an interpretative paradigm. Results: Many HCPs were not confident talking about weight, concerned that they would damage relationships with children and families. Parents wanted routine weight surveillance, but were worried about their children's self-esteem if their weight was discussed. They wanted HCPs to acknowledge the challenges of weight management in children with a physical disability and provide specialized solutions. Children wanted a positively framed and tailored approach to weight discussions, although this had generally not been their experience. Conclusions: Stakeholders describe therapeutic relationships that are currently disconnected around the issue of weight and obesity. However, children, parents and HCPs all believed that discussing this topic was critical. Positively framed, strengths-based and tailored approaches to weight-related discussions are warranted. Implications for Rehabilitation Rates of overweight and obesity in children and youth with physical disabilities are substantially higher than their typically developing peers. Healthcare professionals, children with physical disabilities and families often find weight-related discussions challenging and disconnected. Weight-related discussions should be tailored to the child and family's circumstances and priorities. Positively framed and strengths-based approaches to weight-related discussions are warranted.
引用
收藏
页码:791 / 797
页数:7
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