What is it like to receive a diagnosis of nonepileptic seizures?

被引:93
作者
Thompson, Rebecca [2 ]
Isaac, Claire L. [2 ]
Rowse, Georgina [2 ]
Tooth, Claire L. [3 ]
Reuber, Markus [1 ]
机构
[1] Univ Sheffield, Royal Hallamshire Hosp, Acad Neurol Unit, Sheffield S10 2JF, S Yorkshire, England
[2] Univ Sheffield, Dept Psychol, Clin Psychol Unit, Western Bank, Sheffield S10 2TN, S Yorkshire, England
[3] Royal Hallamshire Hosp, Clin Neuropsychol Serv, Sheffield S10 2JF, S Yorkshire, England
关键词
Psychogenic nonepileptic seizures; Diagnosis; Communication; Interpretative phenomenological analysis; Qualitative research; Dissociation; Conversion; ILLNESS; HEALTH; PSEUDOSEIZURE; BELIEFS; ADULT; LOCUS; DELAY; MODEL;
D O I
10.1016/j.yebeh.2008.12.014
中图分类号
B84 [心理学]; C [社会科学总论]; Q98 [人类学];
学科分类号
03 ; 0303 ; 030303 ; 04 ; 0402 ;
摘要
The aim of this qualitative study was to provide insight into the experience of receiving the diagnosis of nonepileptic seizures (NES) from the patient's perspective. Semistructured interviews were conducted with eight patients who had received the diagnosis of NES over the preceding 6 months. All participants were on a waiting list for psychological treatment. Verbatim records of the interviews were analyzed using interpretative phenomenological analysis (IPA). Six main themes emerged from the data ("the experience of living with nonepileptic seizures", "label and understanding", "being left in limbo land", "doubt and certainty", "feeling like a human being again", and "emotional impact of diagnosis"). An ability to integrate the diagnosis into a personal narrative was key to participants' acceptance of the diagnosis. The communication of the diagnosis left some participants feeling distressed. The results suggest that patients need more time and resources to understand the diagnosis and more support after they have received it. (C) 2008 Elsevier Inc. All rights reserved.
引用
收藏
页码:508 / 515
页数:8
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