The development of quality indicators for systemic lupus erythematosus using electronic health data: A modified RAND appropriateness method

被引:7
作者
Yajima, Nobuyuki [1 ,2 ,3 ]
Tsujimoto, Yasushi [2 ,4 ]
Fukuma, Shingo [5 ]
Sada, Ken-ei [6 ]
Shimizu, Sayaka [2 ]
Niihata, Kakuya [7 ]
Takahashi, Ryo [1 ]
Asano, Yoshihide [8 ]
Azuma, Teruhisa [9 ]
Kameda, Hideto [10 ]
Kuwana, Masataka [11 ]
Kohsaka, Hitoshi [12 ]
Sugiura-Ogasawara, Mayumi [13 ]
Suzuki, Katsuya [14 ]
Takeuchi, Tsutomu [14 ]
Tanaka, Yoshiya [15 ]
Tamura, Naoto [16 ]
Matsui, Toshihiro [17 ,18 ]
Mimori, Tsuneyo [19 ]
Fukuhara, Shunichi [2 ]
Atsumi, Tatsuya [20 ,21 ]
机构
[1] Showa Univ, Sch Med, Dept Med, Div Rheumatol, Tokyo, Japan
[2] Kyoto Univ, Grad Sch Med & Publ Hlth, Dept Healthcare Epidemiol, Kyoto, Japan
[3] Fukushima Med Univ, Ctr Innovat Res Communities & Clin Excellence, Fukushima, Japan
[4] Kyoritsu Hosp, Dept Nephrol & Dialysis, Kawanishi, Japan
[5] Kyoto Univ, Grad Sch Med, Human Hlth Sci, Kyoto, Japan
[6] Okayama Univ, Grad Sch Med Dent & Pharmaceut Sci, Dept Nephrol Rheumatol Endocrinol & Metab, Okayama, Japan
[7] Fukushima Med Univ, Dept Hyg & Prevent Med, Fukushima, Japan
[8] Univ Tokyo, Grad Sch Med, Dept Dermatol, Tokyo, Japan
[9] Fukushima Med Univ, Shirakawa Satellite Teaching & Res Gen Med, Shirakawa, Japan
[10] Toho Univ, Div Rheumatol, Tokyo, Japan
[11] Nippon Med Sch, Dept Allergy & Rheumatol, Tokyo, Japan
[12] Tokyo Med & Dent Univ, Grad Sch Med & Dent Sci, Dept Rheumatol, Tokyo, Japan
[13] Nagoya City Univ, Grad Sch Med Sci, Dept Obstet & Gynecol, Nagoya, Aichi, Japan
[14] Keio Univ, Sch Med, Dept Internal Med, Div Rheumatol, Tokyo, Japan
[15] Univ Occupat & Environm Hlth, Dept Internal Med 1, Kitakyushu, Fukuoka, Japan
[16] Juntendo Univ, Fac Med, Dept Internal Med & Rheumatol, Tokyo, Japan
[17] Tokyo Med & Dent Univ, Grad Sch Med & Dent Sci, Dept Lifetime Clin Immunol, Tokyo, Japan
[18] Natl Hosp Org Sagamihara Hosp, Clin Res Ctr Allergy & Rheumatol, Dept Rheumatol, Sagamihara, Kanagawa, Japan
[19] Kyoto Univ, Grad Sch Med, Dept Rheumatol & Clin Immunol, Kyoto, Japan
[20] Hokkaido Univ, Fac Med, Dept Rheumatol Endocrinol & Nephrol, Sapporo, Hokkaido, Japan
[21] Hokkaido Univ, Grad Sch Med, Sapporo, Hokkaido, Japan
关键词
Performance measures; quality indicators; quality measures; systemic lupus erythematosus; EULAR RECOMMENDATIONS; AMERICAN-COLLEGE; EUROPEAN LEAGUE; OF-CARE; MANAGEMENT; ASSOCIATION; RHEUMATISM;
D O I
10.1080/14397595.2019.1621419
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Objective: Quality indicators (QIs) are tools that standardize evaluations in terms of the minimum acceptable quality of care, presumably contributing for the better management of patients with systemic lupus erythematosus (SLE). This study aimed to develop QIs for SLE using electronic health data. Methods: The modified RAND/UCLA Appropriateness Method was used to develop the QIs. First, a literature review was conducted. Second, the candidate QI items that were available to be evaluated using the electronic health data were extracted. Third, the appropriateness of the items was assessed via rating rounds and panelists' discussions. Results: We found 3621 articles in the initial search. Finally, 34 studies were reviewed, from which 17 potential indicators were extracted as candidate QIs. Twelve indicators were selected as the final QI set through the process of appropriateness. The median appropriateness of these 12 indicators was at least 7.5, and all of them were without disagreement. The QI included assessment of disease activity, treatment of SLE, drug toxicity monitoring, treatment of glucocorticoid complications, and assessment of SLE complications. Conclusion: We formulated 12 QIs for the assessment of patients with SLE based on electronic medical data. Our QI set would be a practical tool as a quality measure.
引用
收藏
页码:525 / 531
页数:7
相关论文
共 27 条
[1]   EULAR recommendations for women's health and the management of family planning, assisted reproduction, pregnancy and menopause in patients with systemic lupus erythematosus and/or antiphospholipid syndrome [J].
Andreoli, L. ;
Bertsias, G. K. ;
Agmon-Levin, N. ;
Brown, S. ;
Cervera, R. ;
Costedoat-Chalumeau, N. ;
Doria, A. ;
Fischer-Betz, R. ;
Forger, F. ;
Moraes-Fontes, M. F. ;
Khamashta, M. ;
King, J. ;
Lojacono, A. ;
Marchiori, F. ;
Meroni, P. L. ;
Mosca, M. ;
Motta, M. ;
Ostensen, M. ;
Pamfil, C. ;
Raio, L. ;
Schneider, M. ;
Svenungsson, E. ;
Tektonidou, M. ;
Yavuz, S. ;
Boumpas, D. ;
Tincani, A. .
ANNALS OF THE RHEUMATIC DISEASES, 2017, 76 (03) :476-485
[2]   EULAR recommendations for the management of systemic lupus erythematosus. Report of a task force of the EULAR standing committee for international clinical studies including therapeutics [J].
Bertsias, G. ;
Ioannidis, J. P. A. ;
Boletis, J. ;
Bombardieri, S. ;
Cervera, R. ;
Dostal, C. ;
Font, J. ;
Gilboe, I. M. ;
Houssiau, F. ;
Huizinga, T. ;
Isenberg, D. ;
Kallenberg, C. G. M. ;
Khamashta, M. ;
Piette, J. C. ;
Schneider, M. ;
Smolen, J. ;
Sturfelt, G. ;
Tincani, A. ;
van Vollenhoven, R. ;
Gordon, C. ;
Boumpas, D. T. .
ANNALS OF THE RHEUMATIC DISEASES, 2008, 67 (02) :195-205
[3]   Joint European League Against Rheumatism and European Renal Association-European Dialysis and Transplant Association (EULAR/ERA-EDTA) recommendations for the management of adult and paediatric lupus nephritis [J].
Bertsias, George K. ;
Tektonidou, Maria ;
Amoura, Zahir ;
Aringer, Martin ;
Bajema, Ingeborg ;
Berden, Jo H. M. ;
Boletis, John ;
Cervera, Ricard ;
Doerner, Thomas ;
Doria, Andrea ;
Ferrario, Franco ;
Floege, Juergen ;
Houssiau, Frederic A. ;
Ioannidis, John P. A. ;
Isenberg, David A. ;
Kallenberg, Cees G. M. ;
Lightstone, Liz ;
Marks, Stephen D. ;
Martini, Alberto ;
Moroni, Gabriela ;
Neumann, Irmgard ;
Praga, Manuel ;
Schneider, Matthias ;
Starra, Argyre ;
Tesar, Vladimir ;
Vasconcelos, Carlos ;
van Vollenhoven, Ronald F. ;
Zakharova, Helena ;
Haubitz, Marion ;
Gordon, Caroline ;
Jayne, David ;
Boumpas, Dimitrios T. .
ANNALS OF THE RHEUMATIC DISEASES, 2012, 71 (11) :1771-1782
[4]   Defining and measuring quality of care: a perspective from US researchers [J].
Brook, RH ;
McGlynn, EA ;
Shekelle, PG .
INTERNATIONAL JOURNAL FOR QUALITY IN HEALTH CARE, 2000, 12 (04) :281-295
[5]   Improving the quality of health care - Research methods used in developing and applying quality indicators in primary care [J].
Campbell, SM ;
Braspenning, J ;
Hutchinson, A ;
Marshall, MN .
BRITISH MEDICAL JOURNAL, 2003, 326 (7393) :816-819
[6]   Defining quality of care [J].
Campbell, SM ;
Roland, MO ;
Buetow, SA .
SOCIAL SCIENCE & MEDICINE, 2000, 51 (11) :1611-1625
[7]   Accountability Measures - Using Measurement to Promote Quality Improvement [J].
Chassin, Mark R. ;
Loeb, Jerod M. ;
Schmaltz, Stephen P. ;
Wachter, Robert M. .
NEW ENGLAND JOURNAL OF MEDICINE, 2010, 363 (07) :683-688
[8]   EVALUATING QUALITY OF MEDICAL CARE [J].
DONABEDIAN, A .
MILBANK MEMORIAL FUND QUARTERLY-HEALTH AND SOCIETY, 1966, 44 (03) :166-206
[9]  
Farquhar M, 2008, Patient Safety and Quality: An Evidence-Based Handbook for Nurses
[10]  
Fitch K., 2001, RANDUCLA APPROPRIATE