Toward Culturally Tailored Advance Care Planning for the Chinese Diaspora: An Integrative Systematic Review

被引:37
作者
Jia, Zhimeng [1 ]
Leiter, Richard E. [1 ,2 ,3 ]
Yeh, Irene M. [1 ,2 ,3 ]
Tulsky, James A. [1 ,2 ,3 ]
Sanders, Justin J. [1 ,2 ,3 ,4 ]
机构
[1] Dana Farber Canc Inst, Dept Psychosocial Oncol & Palliat Care, 375 Longwood Ave,Room LW 603, Boston, MA 02215 USA
[2] Brigham & Womens Hosp, Dept Med, Div Palliat Med, 75 Francis St, Boston, MA 02115 USA
[3] Harvard Med Sch, Boston, MA 02115 USA
[4] Ariadne Labs, Boston, MA USA
关键词
adult; advance care planning; Asian continental ancestry group; communication; culture; decision making; OF-LIFE CARE; NURSING-HOME RESIDENTS; CANCER-PATIENTS; GENERAL WARDS; END; DIRECTIVES; PERCEPTIONS; PEOPLE; KNOWLEDGE; PREFERENCES;
D O I
10.1089/jpm.2020.0330
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background:The Chinese diaspora experiences disparate end-of-life (EOL) care outcomes. Advance care planning (ACP) may be an effective intervention to improve EOL care, but its reception and uptake in the Chinese diaspora are unknown. Objective:Review and synthesize current literature to develop a culturally tailored ACP framework for the Chinese diaspora. Design:A systematic integrative review framed by Whittemore and Knafl's method was conducted in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA) guidelines. Data Sources:PubMed, Embase, CINAHL, Web of Science, Cochrane Library, and University of York Center for Reviews and Dissemination were systematically searched for articles published before February 2020. All English, peer-reviewed quantitative, qualitative, and mixed-method literature studying ACP in Chinese adults living outside China and Taiwan were included. A mixed-method appraisal tool was utilized for quality assessment. Results:The search yielded 836 unique articles, from which we included 30. Integrative synthesis resulted in a novel framework to guide culturally tailored ACP among the Chinese diaspora. The framework highlights the importance of an authority-initiated, indirect approach to ACP that maximizes individual and collective harmony. Furthermore, due to evolving sociodemographic and acculturation factors, the perception of harmony may differ between individuals and generations. Conclusion:The Chinese diaspora population is willing to engage in ACP. An individualized, culturally sensitive approach that captures and maximizes harmony will be central to the success of ACP in this population. Further work is required to understand the influence of serious illness, spirituality, and family on ACP.
引用
收藏
页码:1662 / 1677
页数:16
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