Health care professionals talking: Are services for young adults with type 1 diabetes fit for purpose?

被引:6
作者
Harris, Margaret [1 ]
James, Steven [2 ]
Perry, Lin [3 ]
Lowe, Julia [1 ]
Dunbabin, Janet [1 ]
Steinbeck, Katharine [4 ]
机构
[1] Univ Newcastle, Fac Hlth & Med, Callaghan, NSW, Australia
[2] Univ Sunshine Coast, Sch Nursing Midwifery & Paramed, Tallon St, Caboolture, Qld 4510, Australia
[3] Univ Technol Sydney, Prince Wales Hosp, Faulty Hlth, South East Sydney Local Hlth Dist, Randwick, NSW, Australia
[4] Univ Sydney, Discipline Paediat & Child Hlth, Childrens Hosp, Westmead, NSW, Australia
基金
英国医学研究理事会;
关键词
adolescents; health care; health care professionals; insulin infusion systems; patient care; patient experience; type; 1; diabetes; young adults; EMERGING ADULTS; TRANSITION; MELLITUS; PERFORMANCE; EXPERIENCES; PROGRAM; SUPPORT; PEOPLE;
D O I
10.1111/jep.13210
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Introduction The challenges of becoming a mature adult may distract young adults with type 1 diabetes from disease self-management, increasing risks for premature morbidity and mortality. Despite the importance of young adults with type 1 diabetes engaging with preventative diabetes-related health care services, few studies report health care professionals' experiences and perceptions of the support that is available, including during the period of transition. This study sought to determine these factors across diverse contexts in one health jurisdiction. Methods This qualitative study was undertaken in New South Wales, Australia. Recruitment was based on a snowball sampling technique, which began with members of an established diabetes service group. Data were collected by individual semistructured interviews with 16 health care professionals, most of whom were registered nurses (75%), working at differing levels of expertise and responsibility across metropolitan and regional/rural areas. Data were analysed using thematic analyses. Results Participants overwhelmingly recognized the time and care needed to support young adults with type 1 diabetes to prepare them for adult self-management and to work with adult diabetes services, and the importance of youth-friendly services. They reported shortfalls and inequitous distribution in services for these young adults. Two themes, addressing the present and future possibilities, expressed their perceptions of services for this population: working with what is available and mapping a route to better services. Conclusion Findings identify opportunities for development in the planning and provision of specialist multidisciplinary health care support for this population. New ideas are needed for policy and practice innovation and for the infrastructure to facilitate this, to ensure that young adults with type 1 diabetes have access to consistent and coordinated diabetes health care services, particularly in nonmetropolitan settings.
引用
收藏
页码:335 / 342
页数:8
相关论文
共 43 条
[11]  
Erickson E. H., 1968, IDENTITY YOUTH CRISI
[12]   Mobile phone support is associated with reduced ketoacidosis in young adults [J].
Farrell, K. ;
Holmes-Walker, D. J. .
DIABETIC MEDICINE, 2011, 28 (08) :1001-1004
[13]  
Gibbs G., 2012, ANAL QUALITATIVE DAT
[14]  
Government of Western Australia, RUR LINK
[15]   Insulin Pump Risks and Benefits: A Clinical Appraisal of Pump Safety Standards, Adverse Event Reporting, and Research Needs A Joint Statement of the European Association for the Study of Diabetes and the American Diabetes Association Diabetes Technology Working Group [J].
Heinemann, Lutz ;
Fleming, G. Alexander ;
Petrie, John R. ;
Holl, Reinhard W. ;
Bergenstal, Richard M. ;
Peters, Anne L. .
DIABETES CARE, 2015, 38 (04) :716-722
[16]   A transition care programme which improves diabetes control and reduces hospital admission rates in young adults with Type 1 diabetes aged 15-25 years [J].
Holmes-Walker, D. J. ;
Llewellyn, A. C. ;
Farrell, K. .
DIABETIC MEDICINE, 2007, 24 (07) :764-769
[17]  
Hynes L, 2014, PEDIAT DIABETES, V17, P509
[18]  
International Diabetes Federation, 2021, IDF diabetes atlas
[19]  
James S, 2016, J DIABETES SCI TECHN, V10, P1112
[20]   Prevalence of vascular complications and factors predictive of their development in young adults with type 1 diabetes: Systematic literature review [J].
James S. ;
Gallagher R. ;
Dunbabin J. ;
Perry L. .
BMC Research Notes, 7 (1)