Documenting and Understanding Parent's Intervention Choices for Their Child with Autism Spectrum Disorder

被引:32
作者
Shepherd, Daniel [1 ,2 ]
Csako, Rita [1 ,2 ]
Landon, Jason [1 ,2 ]
Goedeke, Sonja [1 ,2 ]
Ty, Kelly [1 ,2 ]
机构
[1] Auckland Univ Technol, Sch Publ Hlth & Psychosocial Studies, Auckland, New Zealand
[2] Auckland Univ Technol, Dept Psychol, Private Bag 92006, Auckland 1142, New Zealand
关键词
Autism; ASD; Parent decision making; Intervention choice; DECISIONS; THERAPIES; FAMILIES; SUPPORT; ASD;
D O I
10.1007/s10803-017-3395-7
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Understanding why parents choose some interventions but not others for their child with autism is important for a number of reasons. Estimating the proportion of evidence-based interventions engaged, identifying the agencies influencing parental decisions, and elucidating the barriers or reasons leading to intervention rejection or discontinuation can result in better service provision. New Zealand parents (n = 570) of a child with autism reported what interventions were being engaged, and why some interventions were engaged but not others. Funding was a major determinant of intervention engagement, while medical professionals exerted the most influence. Sources of support were not related to intervention engagement, but parental perceptions of their child's symptom severity were. Finally, non-engagement does not necessarily reflect parental opposition to an intervention, but rather the existence of barriers.
引用
收藏
页码:988 / 1001
页数:14
相关论文
共 44 条
[11]  
Elder J H, 1994, J Child Adolesc Psychiatr Nurs, V7, P9, DOI 10.1111/j.1744-6171.1994.tb00184.x
[12]  
Foxx R.M., 2015, CONTROVERSIAL THERAP, V2nd, DOI [10.4324/9781315754345, DOI 10.4324/9781315754345]
[13]   Parental reports on the efficacy of treatments and therapies for their children with autism spectrum disorders [J].
Goin-Kochel, Robin P. ;
Mackintosh, Virginia H. ;
Myers, Barbara J. .
RESEARCH IN AUTISM SPECTRUM DISORDERS, 2009, 3 (02) :528-537
[14]   Parental reports on the use of treatments and therapies for children with autism spectrum disorders [J].
Goin-Kochel, Robin P. ;
Myers, Barbara J. ;
Mackintosh, Virginia H. .
RESEARCH IN AUTISM SPECTRUM DISORDERS, 2007, 1 (03) :195-209
[15]   Internet survey of treatments used by parents of children with autism [J].
Green, VA ;
Pituch, KA ;
Itchon, J ;
Choi, A ;
O'Reilly, M ;
Sigafoos, J .
RESEARCH IN DEVELOPMENTAL DISABILITIES, 2006, 27 (01) :70-84
[16]   Parental experience with treatments for autism [J].
Green, Vanessa A. .
JOURNAL OF DEVELOPMENTAL AND PHYSICAL DISABILITIES, 2007, 19 (02) :91-101
[17]  
Hall Sarah E, 2012, Complement Ther Clin Pract, V18, P159, DOI 10.1016/j.ctcp.2012.03.004
[18]   Factors Affecting Parental Decision-Making Regarding Interventions for Their Child With Autism [J].
Hebert, Elizabeth Baltus .
FOCUS ON AUTISM AND OTHER DEVELOPMENTAL DISABILITIES, 2014, 29 (02) :111-124
[19]   The Autism Impact Measure (AIM): Initial Development of a New Tool for Treatment Outcome Measurement [J].
Kanne, Stephen M. ;
Mazurek, Micah O. ;
Sikora, Darryn ;
Bellando, Jayne ;
Branum-Martin, Lee ;
Handen, Benjamin ;
Katz, Terry ;
Freedman, Brian ;
Powell, Mary Paige ;
Warren, Zachary .
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2014, 44 (01) :168-179
[20]   Autism and ABA: The Gulf Between North America and Europe [J].
Keenan, Mickey ;
Dillenburger, Karola ;
Roettgers, Hanns Ruediger ;
Dounavi, Katerina ;
Jonsdottir, Sigriour Loa ;
Moderato, Paolo ;
Schenk, Jacqueline J. A. M. ;
Virues-Ortega, Javier ;
Roll-Pettersson, Lise ;
Martin, Neil .
REVIEW JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2015, 2 (02) :167-183