Defining quality of life for individuals with neurodevelopmental disorders: Challenges within an inpatient population

被引:4
作者
Harriman, Emma [1 ]
Oyefeso, Adenekan [1 ]
机构
[1] Cawston Pk, Aylsham Rd, Cawston NR10 4JD, Norfolk, England
关键词
quality of life; neurodevelopmental disorders; intellectual disabilities;
D O I
10.1177/1744629520982836
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
Purpose: The concept of Quality of Life (QoL) for people with neurodevelopmental disorders primarily focuses on deinstitutionalisation and community inclusion. This population, however, often presents with comorbid diagnoses and is sectioned to treatment facilities under the Mental Health Act. The aim of this paper is to review the existing literature on QoL and discuss the consideration of this specialised population and the environment when measuring QoL. Methods: Databases were searched using specific inclusion and exclusion criteria to ensure literature reviewed was relevant to the defined population. The challenges identified from the literature were categorised into interpersonal and intrapersonal factors. Results: A total of 30 articles were retrieved and considered in this review. Conclusions: This paper discusses how these individuals present with different behaviours and opportunities, which subsequently make it difficult to apply existing knowledge of QoL. The need to further examine the QoL in this specific population is discussed.
引用
收藏
页码:455 / 469
页数:15
相关论文
共 74 条
[41]   The use of multi-element behaviour support planning with a man with severe learning disabilities and challenging behaviour [J].
MacDonald, Anne ;
Hume, Linda ;
McGill, Peter ;
Centre, Tizard .
BRITISH JOURNAL OF LEARNING DISABILITIES, 2010, 38 (04) :280-285
[42]   Neuropsychopathological comorbidities in learning disorders [J].
Margari, Lucia ;
Buttiglione, Maura ;
Craig, Francesco ;
Cristella, Arcangelo ;
de Giambattista, Concetta ;
Matera, Emilia ;
Operto, Francesca ;
Simone, Marta .
BMC NEUROLOGY, 2013, 13
[43]   Concurrence between subject and proxy ratings of quality of life for people with and without intellectual disabilities [J].
McVilly, Keith R. ;
Burton-Smith, Rosanne M. ;
Davidson, John A. .
JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY, 2000, 25 (01) :19-39
[44]   Quality of life issues in the development and evaluation of services for people with intellectual disability [J].
McVilly, Keith R. ;
Rawlinson, Rosanne B. .
JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY, 1998, 23 (03) :199-218
[45]   Critique on the conceptualisation of quality of life: A review and evaluation of different conceptual approaches [J].
Moons, Philip ;
Budts, Werner ;
De Geest, Sabina .
INTERNATIONAL JOURNAL OF NURSING STUDIES, 2006, 43 (07) :891-901
[46]   Quality of Life in Persons with Intellectual Disabilities and Mental Health Problems: An Explorative Study [J].
Morisse, Filip ;
Vandemaele, Eleonore ;
Claes, Claudia ;
Claes, Lien ;
Vandevelde, Stijn .
SCIENTIFIC WORLD JOURNAL, 2013,
[47]  
NHS, 2019, SYMPT CLIN DEPR
[48]  
Olchik Maira Rozenfeld, 2016, Dement. neuropsychol., V10, P303, DOI 10.1590/s1980-5764-2016dn1004008
[49]   Factors contributing to depressive mood states in everyday life: A systematic review [J].
Pemberton, Rachel ;
Tyszkiewicz, Matthew D. Fuller .
JOURNAL OF AFFECTIVE DISORDERS, 2016, 200 :103-110
[50]   The role of mental health and challenging behaviour in the quality of life in people with intellectual disabilities in Spain [J].
Pena-Salazar, Carlos ;
Arrufat, Francesc ;
Fontanet, Abel ;
Font, Josep ;
Mas, Silvia ;
Roura-Poch, Pere ;
Manel Santos, Josep .
ADVANCES IN MENTAL HEALTH AND INTELLECTUAL DISABILITIES, 2018, 12 (01) :34-43