Pilot of the Chronic Disease Self-Management Program for Adolescents and Young Adults With Sickle Cell Disease

被引：27

作者：

Crosby, Lori E. ^{[1
,2
]}

Joffe, Naomi E. ^{[1
]}

Peugh, James ^{[1
]}

Ware, Russell E. ^{[3
]}

Britto, Maria T. ^{[2
,4
]}

机构：

[1] Cincinnati Childrens Hosp Med Ctr, Div Behav Med, Cincinnati, OH 45229 USA

[2] Cincinnati Childrens Hosp Med Ctr, James M Anderson Ctr Hlth Syst Excellence, Dept Pediat, Cincinnati, OH 45229 USA

[3] Cincinnati Childrens Hosp Med Ctr, Div Hematol, Cincinnati, OH 45229 USA

[4] Cincinnati Childrens Hosp Med Ctr, Div Adolescent Med, Cincinnati, OH 45229 USA

来源：

JOURNAL OF ADOLESCENT HEALTH | 2017年 / 60卷 / 01期

基金：

美国国家卫生研究院;

关键词：

Sickle cell disease; Adolescents; Young adults; Pediatric hematology; Chronic illness; Self-management; Intervention; CHILDREN;

D O I：

10.1016/j.jadohealth.2016.08.022

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

Purpose: This study evaluated the feasibility of a group self-management intervention, the well-established Stanford Chronic Disease Self-Management Program (CDSMP), for adolescents and young adults (AYA) with sickle cell disease (SCD). Methods: A total of 22 AYA participants with SCD, ages 16-24 years, completed self-efficacy and quality of life measures before the CDSMP, after, and 3 and 6 months later. Results: This AYA cohort showed significant improvements in self-efficacy (primary outcome) after the intervention. Analyses of follow-up data revealed a medium effect of the CDSMP on patient activation 3 months post although this was not sustained. Participants were highly satisfied, but only 64% completed the program. Conclusions: This study demonstrates that the CDSMP is acceptable and has the ability to improve self-efficacy. Additional research is needed to determine feasibility and evaluate health outcomes for AYA with SCD. (C) 2016 Society for Adolescent Health and Medicine. All rights reserved.

引用

页码：120 / 123

页数：4

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