When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority

被引：11

作者：

Brothers, Kyle B. ^{[1
]}

Holm, Ingrid A. ^{[2
,3
,4
]}

Childerhose, Janet E. ^{[5
]}

Antommaria, Armand H. M. ^{[6
]}

Bernhardt, Barbara A. ^{[7
]}

Clayton, Ellen Wright ^{[8
]}

Gelb, Bruce D. ^{[9
]}

Joffe, Steven ^{[10
]}

Lynch, John A. ^{[11
]}

McCormick, Jennifer B. ^{[12
,13
,14
]}

McCullough, Laurence B. ^{[15
]}

Parsons, D. Williams ^{[16
,17
]}

Sundaresan, Agnes S. ^{[18
]}

Wolf, Wendy A. ^{[2
]}

Yu, Joon-Ho ^{[19
]}

Wilfond, Benjamin S. ^{[20
]}

机构：

[1] Univ Louisville, Dept Pediat, Sch Med, 231 E Chestnut St,N-97, Louisville, KY 40202 USA

[2] Boston Childrens Hosp, Div Genet & Genom, Boston, MA USA

[3] Boston Childrens Hosp, Manton Ctr Orphan Dis Res, Boston, MA USA

[4] Harvard Univ, Sch Med, Dept Pediat, Boston, MA 02115 USA

[5] Univ Michigan, Ctr Bioeth & Social Sci Med, Ann Arbor, MI 48109 USA

[6] Cincinnati Childrens Hosp Med Ctr, Eth Ctr, Cincinnati, OH 45229 USA

[7] Univ Penn, Dept Med, Perelman Sch Med, Philadelphia, PA 19104 USA

[8] Vanderbilt Univ, Med Ctr, Ctr Biomed Eth & Soc, Nashville, TN USA

[9] Icahn Sch Med Mt Sinai, Mindich Child Hlth & Dev Inst, Dept Pediat & Genet & Genom Sci, New York, NY 10029 USA

[10] Univ Penn, Perelman Sch Med, Dept Med Eth & Hlth Policy, Philadelphia, PA 19104 USA

[11] Univ Cincinnati, Dept Commun, Cincinnati, OH USA

[12] Mayo Clin, Div Gen Internal Med, Rochester, MN USA

[13] Mayo Clin, Div Hlth Care & Policy Res, Rochester, MN USA

[14] Mayo Clin, Mayo Biomed Eth Program, Rochester, MN USA

[15] Baylor Coll Med, Ctr Med Eth & Hlth Policy, Houston, TX 77030 USA

[16] Baylor Coll Med, Texas Childrens Canc Ctr, Houston, TX 77030 USA

[17] Baylor Coll Med, Dept Pediat, Houston, TX 77030 USA

[18] Henry Hood Ctr Hlth Res, Geisinger Hlth Syst, Danville, PA USA

[19] Univ Washington, Dept Pediat, Seattle, WA 98195 USA

[20] Seattle Childrens Hosp, Treuman Katz Ctr Pediat Eth, Seattle, WA USA

来源：

JOURNAL OF PEDIATRICS | 2016年 / 168卷

关键词：

INFORMED-CONSENT; ATTITUDES; RETURN; PRIVACY; DISEASE;

D O I：

10.1016/j.jpeds.2015.09.020

中图分类号：

R72 [儿科学];

学科分类号：

100202 ;

摘要：

引用

页码：226 / +

页数：7

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