Living donor kidney transplantation: preferences and concerns amongst patients waiting for transplantation in New Zealand

Objectives: There are multiple barriers to kidney transplantation from a living donor for patients. A critical factor is their own approach to pursuing opportunities for transplantation, including their preferences for living or deceased donation and their concerns about living donation. As part of a wider study into barriers to living donor transplantation in New Zealand, our aim was to examine the preferences and concerns of New Zealand patients who are waiting for kidney transplantation. Methods: Mixed methods were used, incorporating a mailed survey of patients on the waiting list for a deceased donor transplant, followed by in-depth semi-structured interviews. The survey included questions about preferences for living or deceased donation, willingness to accept a kidney from a potential donor if offered and concerns about aspects of living donation. Responses were received from 193 (38.2%) patients. These issues were explored in more depth in follow-up interviews with 17 patients. Results: The majority of patients were positive about living donor transplantation with only a few actively preferring a deceased donor. The vast majority would accept an offer from a potential donor. Donors being financially out-of-pocket and being upset if the transplant failed were the highest ranked concerns. Impacts on donor health were also a significant concern for patients. Positive views about living donor transplantation and stated willingness to accept offers could be undermined by deep, unresolved concerns and could result in patients declining offers from potential donors. Being well-informed about the risks to donors and having confidence in the donor evaluation process were important for reducing patients' concerns. Conclusions: The preferences and concerns of patients in New Zealand are similar to those reported elsewhere. Education needs to address the concerns of patients and ensure they have accurate knowledge about living donation. Concerns about financial impacts on donors, however, arise from New Zealand's policy of not fully reimbursing living donors for lost income and cannot be addressed through improved education.