The participants' perspective: how biographic-narrative intervention influences identity negotiation and quality of life in aphasia

被引:52
作者
Corsten, Sabine [1 ]
Schimpf, Erika J. [1 ]
Konradi, Juergen [1 ]
Keilmann, Annerose [2 ]
Hardering, Friedericke [3 ]
机构
[1] Catholic Univ Appl Sci, Dept Hlth Care & Nursing, Mainz, Germany
[2] Univ Med Ctr, Dept Commun Disorders, Mainz, Germany
[3] Goethe Univ Frankfurt, Inst Social & Polit Sci, Frankfurt, Germany
关键词
aphasia; quality of life; identity; biographic-narrative work; outcome measures; PEOPLE; SATISFACTION; POSTSTROKE; THERAPY; DISEASE; STROKE;
D O I
10.1111/1460-6984.12173
中图分类号
R36 [病理学]; R76 [耳鼻咽喉科学];
学科分类号
100104 ; 100213 ;
摘要
Background: People with aphasia experience a pronounced decrease in quality of life (QoL). Beyond that identity negotiation is hindered, which is crucial for QoL. Biographic-narrative approaches use life story telling to support identity (re) development after disruptive events like stroke. Because of the language deficits inherent in aphasia such 'talk-based' approaches have to be modified for an optimal use. Aims: To evaluate an adapted interdisciplinary biographic-narrative intervention using quantitative measures of health-related quality of life (HRQL) and mood. Additionally, semi-structured interviews were conducted to gain a deeper understanding of identity development processes in people with aphasia. Methods & Procedures: Twenty-seven participants with various types of chronic aphasia were enrolled. The biographic narrative intervention consisted of five face-to-face in-depth interviews and seven group sessions conducted over 10 weeks in a mixed-method design with pre- and post-tests and a follow-up assessment 3 months post-intervention. For quantitative evaluation the Aachen Life Quality Inventory (ALQI), the Satisfaction with Life Scale (SWLS) and the Visual Analog Mood Scales (VAMS) were used. Semi-structured interviews were conducted post-treatment, including questions concerning the participants' experiences with the intervention and identity change. Results were analysed using interpretative principles from Grounded Theory. Outcomes & Results: For all 27 participants, we found significant and stable growth in HRQL. Self-reported states of mood also improved. As expected, overall cognitively based life satisfaction did not change. The interviews revealed two main categories: 'evaluation of the face-to-face interviews' and 'evaluation of the group sessions'. Further analysis found four overlapping main themes which were identified as identity issues: agency, control, disease concept and doing things. Conclusions & Implications: Our quantitative and qualitative results demonstrated the benefits associated with the biographic-narrative intervention. The participants' sense of self changed through the approach. The findings provide foundations for future work using biographic narrative interventions to influence QoL and identity renegotiation in people with aphasia.
引用
收藏
页码:788 / 800
页数:13
相关论文
共 39 条
  • [1] HUMAN AGENCY IN SOCIAL COGNITIVE THEORY
    BANDURA, A
    [J]. AMERICAN PSYCHOLOGIST, 1989, 44 (09) : 1175 - 1184
  • [2] Narrative identity and eudaimonic well-being
    Bauer, Jack J.
    McAdams, Dan P.
    Pals, Jennifer L.
    [J]. JOURNAL OF HAPPINESS STUDIES, 2008, 9 (01) : 81 - 104
  • [3] BRODY H, 1994, LIT MED, V13, P79
  • [4] The Aphasic Storyteller: Coconstructing Stories to Promote Psychosocial Well-Being After Stroke
    Bronken, Berit Arnesveen
    Kirkevold, Marit
    Martinsen, Randi
    Kvigne, Kari
    [J]. QUALITATIVE HEALTH RESEARCH, 2012, 22 (10) : 1303 - 1316
  • [5] Living successfully with aphasia: A qualitative meta-analysis of the perspectives of individuals with aphasia, family members, and speech-language pathologists
    Brown, Kyla
    Worrall, Linda E.
    Davidson, Bronwyn
    Howe, Tami
    [J]. INTERNATIONAL JOURNAL OF SPEECH-LANGUAGE PATHOLOGY, 2012, 14 (02) : 141 - 155
  • [6] Snapshots of success: An insider perspective on living successfully with aphasia
    Brown, Kyla
    Worrall, Linda
    Davidson, Bronwyn
    Howe, Tami
    [J]. APHASIOLOGY, 2010, 24 (10) : 1267 - 1295
  • [7] Bury M, 1982, Sociol Health Illn, V4, P167, DOI 10.1111/1467-9566.ep11339939
  • [8] Quality of life following stroke: Negotiating disability, identity, and resources
    Clarke, P
    Black, SE
    [J]. JOURNAL OF APPLIED GERONTOLOGY, 2005, 24 (04) : 319 - 336
  • [9] Corbin Juliet, 2008, Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory, DOI 10.4135/9781452230153
  • [10] Life satisfaction after traumatic brain injury
    Corrigan, JD
    Bogner, JA
    Mysiw, WJ
    Clinchot, D
    Fugate, L
    [J]. JOURNAL OF HEAD TRAUMA REHABILITATION, 2001, 16 (06) : 543 - 555