The rise of the genetic counseling profession in China

被引:17
作者
Sun, Liya [1 ,3 ]
Liang, Bo [2 ]
Zhu, Liping [3 ]
Shen, Yiping [4 ,5 ,6 ,7 ,8 ]
He, Lin [1 ,2 ,3 ,9 ]
机构
[1] Shanghai Jiao Tong Univ, Minist Educ, Key Lab Genet Dev & Neuropsychiat Disorders, Bio X Inst, Shanghai, Peoples R China
[2] Chinese Board Genet Counseling, Shanghai, Peoples R China
[3] Shanghai Ctr Women & Childrens Hlth, Shanghai, Peoples R China
[4] Childrens Hosp, Maternal & Child Hlth Hosp, Nanning, Guangxi, Peoples R China
[5] Birth Defect Prevent Res Inst Guangxi Zhuang Auto, Nanning, Guangxi, Peoples R China
[6] Shanghai Jiao Tong Univ, Shanghai Childrens Med Ctr, Shanghai, Peoples R China
[7] Boston Childrens Hosp, Div Genet & Genom, Boston, MA USA
[8] Harvard Med Sch, Dept Neurol, Boston, MA 02115 USA
[9] Jinan Univ, Baoan Maternal & Child Hlth Hosp, Brith Defects Prevent Res & Transformat Team SZSM, Sanming Project Med Shenzhen, Shenzhen 518102, Peoples R China
关键词
China; Chinese Board of Genetic Counseling; genetic counseling and genetic counselor; history and future; professionalization; UNITED-KINGDOM; ASSOCIATION; MUTATIONS; GENOMICS; FUTURE; GROWTH; IHH;
D O I
10.1002/ajmg.c.31693
中图分类号
Q3 [遗传学];
学科分类号
071007 ; 090102 ;
摘要
The rapid development of genetic and genomic technologies has greatly boosted medical genetic researches and clinical services worldwide. Since last century, genetic counseling in the United States has helped individuals and families understand, accept, and cope with their genetic issues. This fledging profession, which is in essence a branch of social work, emerged in China relatively late but has rapidly grown over the last few years. We believe that genetic counseling will continue to play a pivotal role in building communication channels between medical doctors and their patients, the government and the general public, and social organizations and their customers in China. The growth of genetic counseling aims to enable patients and family members to make informed decision which in turn will lead to the reduction of the birth prevalence of severe congenital anomalies and genetic disorders.
引用
收藏
页码:170 / 176
页数:7
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