An empirically based practice perspective on the transition to adulthood for solid organ transplant recipients

被引:13
作者
Annunziato, Rachel A. [1 ]
Freiberger, Dawn [2 ]
Martin, Kathy [3 ]
Helcer, Jacqueline [1 ]
Fitzgerald, Christopher [4 ]
Lefkowitz, Debra S. [4 ]
机构
[1] Fordham Univ, Bronx, NY 10458 USA
[2] Boston Childrens Hosp, Boston, MA USA
[3] Hosp Sick Children, Toronto, ON M5G 1X8, Canada
[4] Childrens Hosp Philadelphia, Philadelphia, PA 19104 USA
关键词
pediatric transplantation; transition; transfer; HEALTH-CARE; PEDIATRIC TRANSPLANTATION; POSITION PAPER; ADOLESCENTS; ADHERENCE; SERVICES; RESPONSIBILITY; EXPERIENCES; CONSENSUS; PATIENT;
D O I
10.1111/petr.12359
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Preparing patients for transitioning to self-managed care and subsequently transferring to the adult healthcare system has become a critical process for clinicians working with pediatric transplant recipients. This paper reviews several barriers to a successful transition. These include patient barriers, caregiver barriers, and considerations within pediatric and adult centers. To date, few approaches for improving the transition process have been empirically tested. This review details studies that have examined possible models including usage of a transition coordinator and transition clinics. Recommendations are offered to promote an optimal transition including the importance and content of preparation, assessing and addressing transition readiness, insuring the involvement of all stakeholders, and finally, at minimum providing services during the transfer period. Future directions are offered aiming to advance this important area of investigation.
引用
收藏
页码:794 / 802
页数:9
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